new topic--numbers
new topic--numbers
Does anybody have any statistics on aspects of this injury? How many tbpa's---age groups----causes---how many suicides?----motorcycle related vs. 'other'--male/female ect. ect. Oh and average life expectancy OR average age of death in various groups. i.e. male/female--age--nationality & race.
Re: new topic--numbers
Hi Ronin...yep, some of us in the TBPI group have been working on collecting these stats in the U.K. for a while now, and one of our leading BPI surgeons is taking part in a big patient audit which includes contacting past patients going back approx 15 years. From this audit, they will be able to sort the data and get a better picture of the people with a TBPI at one hospital at least.
The major UK centre that has been treating BPI for 30+ years has stats but we are not really privy to them...nothing sinnister, its just that they are not for public knowledge. I do know that the average number who pass thru these two centres is about 400-450 a year and increasing every year along with the annual increase in motorcycle sales. The number of women who have this injury is increasing now too, since more women are getting into biking.
My own research, which I did with the help of NABD (National Association of Bikers with a Disability) has so far come up with these figures (for the UK):
89% injuries are from RTA'S involving motorcycles
90% are male under the age of 35
9% are caused by medical misadventure
...there is more but the percentages change everytime someone fills in the questionnare. I didn't do one to include the U.S. but I can tell you that within 3 months of putting up the registration form on the TBPI website, I received answers from over 200 people, mostly from the U.S. and most of them not known to me from this board or via the TBPI group boards. Makes you seriously wonder just how many are out there thinking they are the only one.
Liz B
The major UK centre that has been treating BPI for 30+ years has stats but we are not really privy to them...nothing sinnister, its just that they are not for public knowledge. I do know that the average number who pass thru these two centres is about 400-450 a year and increasing every year along with the annual increase in motorcycle sales. The number of women who have this injury is increasing now too, since more women are getting into biking.
My own research, which I did with the help of NABD (National Association of Bikers with a Disability) has so far come up with these figures (for the UK):
89% injuries are from RTA'S involving motorcycles
90% are male under the age of 35
9% are caused by medical misadventure
...there is more but the percentages change everytime someone fills in the questionnare. I didn't do one to include the U.S. but I can tell you that within 3 months of putting up the registration form on the TBPI website, I received answers from over 200 people, mostly from the U.S. and most of them not known to me from this board or via the TBPI group boards. Makes you seriously wonder just how many are out there thinking they are the only one.
Liz B
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Karl w/ a K
- Posts: 154
- Joined: Mon Sep 15, 2003 8:48 pm
Re: new topic--numbers
Liz,
You referred to the Tbpi web site and a questionaire. Can you tell me where I can find that? Also your post regarding pain helped me put mine in perspective.Thanks.
You referred to the Tbpi web site and a questionaire. Can you tell me where I can find that? Also your post regarding pain helped me put mine in perspective.Thanks.
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: new topic--numbers
Hi Karl-the tbpi website can be found here www.tbpi-group.org There is a very relaxed message board you can access thru the site.
Ronin, the numbers-apart from the study being done by the UK hossies as detailed by Liz I have never seen any studies done elsewhere, altho I am told they do keep numbers in many asian countries where tbpi is VERY common, many of the surgeries started in asia. I have read that 65% of US college footballers get stingers or burners-those are tbpi altho usually less severe than RTA related ones (that's gridiron football I'm assuming, what I call football doesn't involve any risk to the upper body (unless you're Maradona....oops digressing there...:0)so there are a fair few of us about! Dr Kline's most recent paper says he has noticed an increase in numbers since the 80's, due he thinks to better lifesaving techniques at the roadside. The majority of people affected are young males, altho as Lizzy says, that's changing too-I'm a bike related injury and I'm female and we have several other female bike related tbpi posting on the other site.
I don't know whether tbpi would affect how long I live, I'm planning on being around a long time. Keep asking questions, if everyone does it then maybe we'll get the answers.
Ronin, the numbers-apart from the study being done by the UK hossies as detailed by Liz I have never seen any studies done elsewhere, altho I am told they do keep numbers in many asian countries where tbpi is VERY common, many of the surgeries started in asia. I have read that 65% of US college footballers get stingers or burners-those are tbpi altho usually less severe than RTA related ones (that's gridiron football I'm assuming, what I call football doesn't involve any risk to the upper body (unless you're Maradona....oops digressing there...:0)so there are a fair few of us about! Dr Kline's most recent paper says he has noticed an increase in numbers since the 80's, due he thinks to better lifesaving techniques at the roadside. The majority of people affected are young males, altho as Lizzy says, that's changing too-I'm a bike related injury and I'm female and we have several other female bike related tbpi posting on the other site.
I don't know whether tbpi would affect how long I live, I'm planning on being around a long time. Keep asking questions, if everyone does it then maybe we'll get the answers.
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: new topic--numbers
oops that link didn't work try these
http://tbpiukgroup.homestead.com/index_1.html
http://pub28.ezboard.com/fadultswithbra ... juriesfrm1
the second one is the message board. Enjoy!
http://tbpiukgroup.homestead.com/index_1.html
http://pub28.ezboard.com/fadultswithbra ... juriesfrm1
the second one is the message board. Enjoy!