Will any one be at tch on the 14th of Jan? Matthew will be having his mod-quad(12mo old). we will be staying at the Hampton Inn. Has any one stayed there before?
Thanks Aurora
preparing for trip to tch
Re: preparing for trip to tch
Aurora,
Did I met you at camp? I have a son who is almost a year as well. His name is Ian. I think your son and Ian played (as much as babies can) in the pool together am I right? The Mod-Quad was recomended to us while at camp but we have decided to wait a while. I have more questions for you but I will wait until I know if you are who I think you are!
Kristie
Did I met you at camp? I have a son who is almost a year as well. His name is Ian. I think your son and Ian played (as much as babies can) in the pool together am I right? The Mod-Quad was recomended to us while at camp but we have decided to wait a while. I have more questions for you but I will wait until I know if you are who I think you are!
Kristie
Re: preparing for trip to tch
Hi Kristie, yes it's me. Our kids did play in the pool together. If you don't mind me asking what made you decide to wait?
Aurora
Aurora
Re: preparing for trip to tch
Aurora,
I am not sure if I can explain in a short amount of words why we are waiting but I will do my to share our thoughts on the matter. At the camp I was mainly conerened about Ian needing the primiary surgery so I really wasn't focused on the whole mod-quad thing. So after we returned home I began to do a little research. I started reading every post about the MQ. Some parents mentioned things the kids couldn't do or were told they wouldn't be able to do. Like one had mentioned something about how much thier son loved to play hockey but if he had the MQ that would be much harder to do. I know that to gain something you will also lose something (sometimes). I don't know yet what Ian loves to do. The TCH page had stated that they did the MQ at about 2 years. And then some questions began to go up on the message board as to why it they were doing it younger. One parent even asked if others would do the MQ on a young child (who had not had primary) and a lot indicated they would wait. I had also read on the awarness page that kids with severe strech injuries can recover up to 2 years of age. Ian's recovery is going fairly well so I was hoping that maybe he has a "severe strech" instead of an actual breakage of the nerve. And since no one is going to do nerve surgery on him I felt we could wait until he was at least two to give him every opportunity to recover as much on his own. The specialists that I was seeing in Seattle have mentioned different surgeries a long the way but have agreed that it not be done until after he is 2. We are getting ready to see a new specialist in Pittsburgh (we moved to WV). So since I also know that it is important to make sure Ian's joint is forming as normally as possible I am hoping that they will be willing to do some testing to see how that developement is going along (ie X-ray, MRI). I would rather go through the tests to have proof to be sure surgery is necessary. I guess in a lot of way I don't fully trust the medical community anymore. I want "proof" of him needing or not needing surgery. We are also trying some forms of therapy that I am hoping will help with recovery and I want to give thoes a good amount of time to have a chance to do something.
I know at some point the chances are good that Ian will need some kind of surgery but if all is going well I am willing to put it off for a while.
I told you there was no way I could share in a short amount of words but I think I covered most of what my husband, Andrew, and I have discussed regarding all of it!
I would love to know what Matthew's recovery has been so far. I think they were pretty close in function at camp. How are you doing? I know the decision to go ahead with surgery is not easy and has a lot of added neverousness to your days especially now! I will be praying for you and your family!
Blessings,
Kristie
I am not sure if I can explain in a short amount of words why we are waiting but I will do my to share our thoughts on the matter. At the camp I was mainly conerened about Ian needing the primiary surgery so I really wasn't focused on the whole mod-quad thing. So after we returned home I began to do a little research. I started reading every post about the MQ. Some parents mentioned things the kids couldn't do or were told they wouldn't be able to do. Like one had mentioned something about how much thier son loved to play hockey but if he had the MQ that would be much harder to do. I know that to gain something you will also lose something (sometimes). I don't know yet what Ian loves to do. The TCH page had stated that they did the MQ at about 2 years. And then some questions began to go up on the message board as to why it they were doing it younger. One parent even asked if others would do the MQ on a young child (who had not had primary) and a lot indicated they would wait. I had also read on the awarness page that kids with severe strech injuries can recover up to 2 years of age. Ian's recovery is going fairly well so I was hoping that maybe he has a "severe strech" instead of an actual breakage of the nerve. And since no one is going to do nerve surgery on him I felt we could wait until he was at least two to give him every opportunity to recover as much on his own. The specialists that I was seeing in Seattle have mentioned different surgeries a long the way but have agreed that it not be done until after he is 2. We are getting ready to see a new specialist in Pittsburgh (we moved to WV). So since I also know that it is important to make sure Ian's joint is forming as normally as possible I am hoping that they will be willing to do some testing to see how that developement is going along (ie X-ray, MRI). I would rather go through the tests to have proof to be sure surgery is necessary. I guess in a lot of way I don't fully trust the medical community anymore. I want "proof" of him needing or not needing surgery. We are also trying some forms of therapy that I am hoping will help with recovery and I want to give thoes a good amount of time to have a chance to do something.
I know at some point the chances are good that Ian will need some kind of surgery but if all is going well I am willing to put it off for a while.
I told you there was no way I could share in a short amount of words but I think I covered most of what my husband, Andrew, and I have discussed regarding all of it!
I would love to know what Matthew's recovery has been so far. I think they were pretty close in function at camp. How are you doing? I know the decision to go ahead with surgery is not easy and has a lot of added neverousness to your days especially now! I will be praying for you and your family!
Blessings,
Kristie