Pain, Big time

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
Locked
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Pain, Big time

Post by admin »

Hi folks
I am a 48y/o male lobp injury quite severe. I have a deep burning pain in the arm as long as I can remember and have not found a pain killer that will help so I have lived with it.

My big problem is when I am running a fever it goes into overdrive, big time, sleep is out of the question.
I have tryed most pain killers (demerol,tylenol #3,and the good doc has even tried dialodid to no avail

Does anyone else have this problem and if so what do you take for it

Thanks
Kathleen M

Re: Pain, Big time

Post by Kathleen M »

Hi

That deep burnig pain... have you had mri...emg... xray?

I go for myofacial release and pt and I just had x-ray and the deep burning pain in my good arm is not only from over use and compensation but I have neck damage now....

I am taking relafin now 750mg twice a day and it helps some. I had pain in my right bpi arm and the left one a few years ago and the combination of PT and massage and myofacial release really helped. I took vioxx for only a few days and it worked perfectly but I had an allergic reaction...

Judy T are you reading... she has a pain patch she uses....

Sleep is something else... I have always been the world's worst sleeper... even when I am so tired I can't see... LOL...

Many of the parents noticed that when a child has a fever their arm is impossible... I think that is because it is our weak spot and it hurts more...

One more suggestion... When my arms are really so annoying I can't focus and work past the pain... I put on mineral ice... I think it just distracts but it helps... I also make sure my right arm is warmer at night then the unaffected one... sometimes I think that wakes me up all night...

I hope this helps- Welcome to the boards...
Kath
sunflowers
Posts: 94
Joined: Fri Sep 13, 2002 12:34 pm

Re: Pain, Big time

Post by sunflowers »

My son has had pain in a major way lately their are some non medication alternatives we are researching, but initially the nuerologist put Mike on Nuerontin and that has made a huge difference for him, Have you tryed a pain management team, probably a dumb question... but who knows.

I hope you find some relief soon
Kathleen M

Re: Pain, Big time

Post by Kathleen M »

There is a very long post on Neurontin on the TBPI/board...

It is an old post but has many opinions on this drug.

http://ubpn.org/messageboard/thread ... hread=1531

I refused to take it because I found most pain managers want to give us a pill but some of the side effects are scary... but that's just me...

Sunflowers read this post I don't know how old your son is but I hope you can find something more natural for Mike... once this round of pain subsides...
Growth spurts and any sort of flu or fevers seem to cause us more pain... I hope Mike is feeling well soon.
Kath
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: Pain, Big time

Post by admin »

Thanks Folks
Sory I forgot to sign, gettinga little forgetful.
I have an app. with my neuroligist in May and will ask him about neurontin or some other med that may be good for nerve pain
It seems that as I get older the pain gets worse and since I live in Nova Scotia, Canada I have to travel to Ontario to see a OB speacilist.
Again Thanks
Mervin
sleepless_In_Ohio
Posts: 3
Joined: Tue May 13, 2003 8:09 pm

I just went through this and it lasted 4 LONG days

Post by sleepless_In_Ohio »

I only happens with I'm getting sick but when it happens I can't do anything. Nothing has helped me. It only happens about once every other month but when it does it is truly debilitating.

I truly hope you find releig but I have suffered through this for 35 years
Locked