anyone from Wisconsin?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Josiah's mom
Posts: 14
Joined: Sun Mar 02, 2003 11:17 pm

anyone from Wisconsin?

Post by Josiah's mom »

I was in the OBPI area and Francine suggested I come over here to see if anyone else is in or from Wisconsin. My son is 5 weeks old and has BPI in right arm. We were wondering if anyone knew of any specialists that they could recommend in the area. Or if there was any other information they could share about the area. Of course, if you're in the area and need to know others here, I would love to get to know people and I know Josiah would benefit so much from knowing others as well. So, please, don't be shy. Thanks so much, Sarah, Josiah's mom
francine
Posts: 3656
Joined: Mon Nov 05, 2001 12:52 pm

Re: anyone from Wisconsin?

Post by francine »

Hi Sarah - just me the pest again...

here's a great wisconsin link for you...

Brenda Copeland-Moore
National Brachial Plexus/Erb's Palsy Association, Inc.
P.O. Box 23
Larsen, WI 54947
info@nbpepa.org
http://www.nbpepa.org
Fax: 209-644-5813
Phone: 920-836-2151

Brenda's association has closed but I'm sure she will be of great support to you and help you in anyway she can.

admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: anyone from Wisconsin?

Post by admin »

There is a great group of doctors in a bpi clinic at Milwaukee's Childrens Hospital and are associated with the University. I think you would like them. It might be a great local resource. Though I always think it is important to get more than one opinion, at the important times any ways. Your baby is still very young. Good luck!
julie715
Posts: 57
Joined: Wed Jan 08, 2003 4:18 am

Re: anyone from Wisconsin?

Post by julie715 »

I'm from the other side of the state, near the Minnesota border. I replied to your other post, too, but here's the link to one of our area hospitals. Click on Programs/Services, then Brachial Plexus.

http://www.gillettechildrens.org

Julie
nbpepa
Posts: 47
Joined: Wed May 08, 2002 6:28 pm

Re: anyone from Wisconsin?

Post by nbpepa »

The phone number,e-mail, and fax number are no longer available for the National Brachial Plexus/Erb's Palsy Association.

erbspalsy@usa.net does however continued to be checked.
cybermomx4
Posts: 85
Joined: Thu Jan 16, 2003 8:23 pm

Re: anyone from Wisconsin?

Post by cybermomx4 »

Hello, I am from Illinois but really close to the border....where are you at in Wisconsin ?
Gayle mom of Brandon
Josiah's mom
Posts: 14
Joined: Sun Mar 02, 2003 11:17 pm

Re: anyone from Wisconsin?

Post by Josiah's mom »

thanks everyone for info and support. Gayle, I'm in Milwaukee. Where are you in Illinois? It would be great to get together with someone if you're nearby.
admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: anyone from Wisconsin?

Post by admin »

I am in Waukegan, not that far from Milwaukee.... We would love to get together with you once this bad weather is over. Milwaukee is not that far from us at all !!!!

Gayle
Josiah's mom
Posts: 14
Joined: Sun Mar 02, 2003 11:17 pm

Re: anyone from Wisconsin?

Post by Josiah's mom »

Gayle, you made me so happy! I guess the prospect of meeting someone to talk to is just so great. You never think you're going to be in a situation like this and when you find others in the boat with you, the ride doesn't seem so scary. Email me if you can and maybe we can try to set something up. I'm originally from Southern California and this is my first winter here. I know it's pretty mild but I don't know how long this stuff lasts. xenithjlf@msn.com Excited to hear back from you! Sarah
User avatar
Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Milwaukee Support Group

Post by Brenda333 »

There is a Milwauke Brachial Plexus Support Group. It used to be run by Stephine Schultz. You can reach her at 262-970-9721

I think they meet monthly.
Brenda
BPI Connection
http://www.freewebs.com/wbpic
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