Hi all. It's been quite a while since I have been on any forums as life has just gone on for my now almost 18yo son Paul.
I have just noticed that Paul has developed a facial twitch which seems to be getting worse on his affected side (ROBPI C5/6/7 affected). It affects his mouth/cheek mainly.
I asked him if he was aware of the twitching and he said yes, he thought it might be due to a strange feeling he has been getting in his neck which has been getting worse lately. Typical teenager doesn't say anything.
Just wondering if anyone else has experience similar issues?
Julianne
Facial twitch
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Facial twitch
Julianne,
Things happen as we grow depending how we were injured and where injuries are. It sounds like he needs to see a BPI Specialist.. at this time with these things going on. There is a Medical Resource Link on our home page.
Please keep us updated on Paul. We all learn from one another.
Carolyn J
LOBPI/75
Things happen as we grow depending how we were injured and where injuries are. It sounds like he needs to see a BPI Specialist.. at this time with these things going on. There is a Medical Resource Link on our home page.
Please keep us updated on Paul. We all learn from one another.
Carolyn J
LOBPI/75
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Ellana
- Posts: 3
- Joined: Thu Jan 23, 2014 9:44 pm
- Injury Description, Date, extent, surgical intervention etc: Erb's Palsy, October 31, 1995, lack of full supination of fore arm (right arm) and facial nerve damage.
Re: Facial twitch
Hi. I actually have that issue whenever I lift weights out to the side or above my head. Especially if I am lifting something heavy passed my shoulders. I didn't notice it till a couple years ago. It's an odd sensation. But when I get used to the weight, it doesn't occur as much. Also, my mouth muscles on the erb's side are slightly pulled down and my nose turns slightly in that direction. The doctors told me it's from the erb's palsy. Also, after a hard workout, my cheek muscles feel sort of numb and weak. I can't really explain it. But, I'm not sure if the twitching relates directly to those things but it all stems from the same source. Hope that helps.