Seeking other teens with BPI

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
User avatar
brittwitt
Posts: 26
Joined: Wed Sep 07, 2011 2:37 am
Injury Description, Date, extent, surgical intervention etc: LOBPI
Injured at birth. Moderate injury with no surgeries.
Location: Austin, TX

Re: Seeking other teens with BPI

Post by brittwitt »

Haha I'm here Carolyn! Well I'm 21, so not technically a teenager anymore, but I'd love to talk to any of the teens that want advice or just someone to relate to! You can message me for my email! :)

-Brittney
LOBPI
Top
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Seeking other teens with BPI

Post by Carolyn J »

TO DAWN, "dpoganik »,

I sent you a "Private Message", it's on "Your Control Page" here on UBPN.
HUgs,
"gramma" Carolyn J
LOBPI/74+++++
(I have time to connect people!...LOL) ;)
Top
dpoganik
Posts: 59
Joined: Mon May 13, 2002 10:07 am
Injury Description, Date, extent, surgical intervention etc: my daughter Dani born 4/2000 with a robpi. She had a humeral osteotomy Jan. 2005 in boston with Dr. Waters.
Location: New York

Re: Seeking other teens with BPI

Post by dpoganik »

Thanks Carolyn. I will pass the email onto Danielle. Hopefully they will connect this weekend. Dani is really interested in going to the next camp. We are determined to make it work out. :D
Top
Corinne
Posts: 36
Joined: Sun Nov 04, 2001 9:25 pm

Re: Seeking other teens with BPI

Post by Corinne »

Rich,
I'd love access to th FB page for Tricia. She is 14 now and reluctant to seek out teens on her own. Thanks, Corinne.
Top
User avatar
Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Re: Seeking other teens with BPI

Post by Cara »

My daughter is 12 (mature 12 and has a lot of friends from 4H that are in high school) she is on facebook and loves making new friends. If you want to e-mail me I can give you her contact info cara_kowal@yahoo.com
Rich- could you e-mail me the info on the facebook group, Rosalynn would probably really like it.
Top
Locked

Return to “Parents of OBPI Children”