Boston

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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nkjacoby
Posts: 81
Joined: Sat Jun 21, 2008 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!

Boston

Post by nkjacoby »

Is anyone going to see Dr. Waters in March? My son has an appointment and I thought it would be a good chance to connect with another family.
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
User avatar
nkjacoby
Posts: 81
Joined: Sat Jun 21, 2008 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!

Re: Boston

Post by nkjacoby »

Nicholas' visit went well. He is scheduled for surgery in June. I am so glad that we were able to see Dr. Waters.
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
Corinne
Posts: 36
Joined: Sun Nov 04, 2001 9:25 pm

Re: Boston

Post by Corinne »

What surgery is your son having? My daughter is considering an osteotomy, but wants to know if it will help her elbow pain. Have not gotten any response from my previous post. Do you know? Maybe we will see you there!
User avatar
nkjacoby
Posts: 81
Joined: Sat Jun 21, 2008 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!

Re: Boston

Post by nkjacoby »

Corinne, I sent you a private message.
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Boston

Post by Carolyn J »

HUGGZ to all of you...(((((((((((((((HUG)))))))))))))))))))))))

"gramma" Carolyn J
LOBPI/74

ps I adopt all children and Siblings in our UBPN Family, for that is what we are,F-A-M-I-L-Y
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