Pain - Finally Under Control

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Janelle54
Posts: 112
Joined: Wed Jun 27, 2007 12:38 pm

Pain - Finally Under Control

Post by Janelle54 »

It's been a long time since I've posted Guess I rally didn't have anything new to say. I'm right on the verge of having my pain under control.

I'll try to make a long story short. Jan 2, 2007 I had a serious auto accident caused by black ice. I was med-flight to MGH in Boston, MA. All the damage was to my left upper body. I had several surgeries including nerve transfer.

My left arm never moved below the elbow. Sept 11, 2008 I had a Motor Cortex Stimulator (MCS) implanted. It helped with the pain I incurred from nerve spasms.

My left arm was amputated Nov 28, 2008 just above the elbow.

Unimaginable pain and spasms continued to be an active part of my life.

Jumping forwadr to January 20, 2011 I had a Peripheral Nerve Stimulator( PNS) implanted. It has taken some time and patience to get both devices working successfully together. I believe I am one appointment made with the MCS representative at the neurosurgeons office to have the range of the stimulator increased.

I adjust both stimulatorsr when I feel a spasm building. I have not had the unimaginable pain since September 2011.The last appointment I had with the MCS rep. I just did not have the range set high enough.

I am still on some drugs, No where near what I use to take. I feel I will finally have a life with my pain under control. What a tremendous pleasure it is to say that.

Janelle
Corinne
Posts: 36
Joined: Sun Nov 04, 2001 9:25 pm

Re: Pain - Finally Under Control

Post by Corinne »

Janelle,
Please tell me how the PNS works. My daughter has an OBPI and I have sural nerve damage in my left leg. We live in southern NH and I am interested in a PNS for myself. Who did you see in Boston? Thanks. Corinne
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