for over 2 years i have had no sense of heat or cold on my arm. i could put my arm on a stove and cook it and not feel it.
yesterday, i put my arm on the car door and said OUCH THAT IS HOT!! i was about to jump up and down!! but since i was driving at the time, i could not do that.
now if i could get some strength and movement in my fingers it would be really good. i can make a fist, but other movement is just not there. but i will be ok either way
progress
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: progress
Good news,JOyce!! 
Carolyn J
LOBPI/74
Carolyn J
LOBPI/74
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Fred4545
- Posts: 27
- Joined: Tue Nov 08, 2011 12:00 am
- Injury Description, Date, extent, surgical intervention etc: 48 yr male with BPI from auto accident on 8/07/11. Suspected C5-T1 avulsion from early EMG but recently have flexed bicep. Had many serious and life-threatening injuries to deal with first, but am now doing much better. Just had nerve transfer surgery at Mayo by Dr. Skinner to reinnervate deltoid and tricep. Once this is working, we will move on to nerve/muscle transfer for dealing with my hand.
- Location: Ohio
Re: progress
Congrats JMAR...that is so awesome! I hope you just keep right on going.
I am 10 months post injury and 3 months post op with nerve transfer and can just now feel hot/cold in my thumb, but rest of hand/wrist is numb and without any function. I'm hoping I get some hand/finger movement sometime in the next few months.
Best wishes for continued recovery. Go celebrate!
Jeff
I am 10 months post injury and 3 months post op with nerve transfer and can just now feel hot/cold in my thumb, but rest of hand/wrist is numb and without any function. I'm hoping I get some hand/finger movement sometime in the next few months.
Best wishes for continued recovery. Go celebrate!
Jeff
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: progress
thank you jeff and carolyn. 3 months post-op is no time at all. it will get better and better as time goes by. just dont give up on it. i am 11 months post op but i see things still change on a regular basis. probably will for a long time. hang in there jeff.
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Master DIVER TOM
- Posts: 759
- Joined: Tue May 05, 2009 11:51 am
Re: progress
Hi ,
How do you get grasp
Well hopefully these things will help out of my bag of trys
If you have very little movement this is ware I start with , caveman years ago
For me it was trying to put things in my hand and try to squeeze or hold it with my wich hand. Try things like a small punch up rag or a round sort piece of something like part of a broom handle. If you can grasp it and hold it leave it in your hand for a while. This trick came from Easter Seals in the 1950s I learn Plus squeezing a small rubber ball
(Over Time) you will get more back and that will in-able you to use your limitation to aid your good arm with activity you want to do
Even if your left with very little use-age you still end up building strength in the limitation your left with and you learn to assist your good arm any way It all works out, I think???
Your Doing GREAT Just give yourself slack to adapt it happen , Really Joy comes from our Determination to try Which by Post no one here is lacking That Joy for you
Mr Positive,
Tom
,How do you get grasp
Well hopefully these things will help
out of my bag of trys If you have very little movement this is ware I start with , caveman years ago
For me it was trying to put things in my hand and try to squeeze or hold it with my wich hand. Try things like a small punch up rag or a round sort piece of something like part of a broom handle. If you can grasp it and hold it leave it in your hand for a while. This trick came from Easter Seals in the 1950s I learn Plus squeezing a small rubber ball
(Over Time) you will get more back and that will in-able you to use your limitation to aid your good arm with activity you want to do
Even if your left with very little use-age you still end up building strength in the limitation your left with and you learn to assist your good arm any way It all works out, I think??? Your Doing GREAT
Just give yourself slack to adapt it happen , Really Joy comes from our Determination to try Which by Post no one here is lacking That Joy for you Mr Positive,
Tom
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: progress
my fingers will bend to make a fist but will not move from side to side. so, that is how i grasp things. i dont put small items such as coins in my hand because they fall through my fingers.
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Jeff O
- Posts: 14
- Joined: Thu May 03, 2012 11:36 am
- Injury Description, Date, extent, surgical intervention etc: Sept 20, 2011...first diagnosed with cervical spinal stenosis (which was validated by MRI's and EMG's) had four level (c-3 through c-7) cervical spinal fusion. Right shoulder continued to atrophy and symptoms in right hand/arm continued. Recovered very well from surgery, but...was diagnosed with brachial plexus neuritis April 12, 2012. My right hand is my primary hand. Prior to the injury I was an illustrator that specialized in zoo and aquarium exhibit illustration work. I was very physically active playing ice hockey 2-3 days a week, tennis 2-3 days a week and working out. I am a 52 year old male, but was playing hockey in an open (21 and over) league. Now I'm just hoping that the deterioration of my shoulder will stop/has stopped. My right hand is in constant pain/numbness if I move my elbow away from my ribcage. Have a great sense of hopelessness. Just found this site today.
Re: progress
jmar, Congratulations! What great news. Hope the healing keeps on coming.
Jeff O
Jeff O
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Master DIVER TOM
- Posts: 759
- Joined: Tue May 05, 2009 11:51 am
Re: progress
Really Jmar
Ok I cant move my hand side to side or turn it over in the erbs hand , Ever
My total ability is over hand to grasp and most of grasp come from 4 fingers , I could only achieve a few inch raise in my arm my hole life with out treatment after 10
You will adapt what ever your end limitation are, I think base on being a biker and driving a semi for years with so little use with my erbs This is your unwritten story and of futures and ability yet not seen , but then there are so many Positive post by so many like US
Was this surgery for your hand and grasp?? No clue
I hope you try just squeezing a rubber ball even if its a little overtime you can end up grasping and walking with it. I still do it , sometime I forget it in my hand ,some time I wake up and it still in my hand, It like Worry beads or something
For me that rubber ball idea I got from Easter seals help me a lot to gain grasp even if its over hand I think Dans slings for resting a arm is a great 
to
Tom
Ok
I cant move my hand side to side or turn it over in the erbs hand , Ever My total ability is over hand to grasp and most of grasp come from 4 fingers , I could only achieve a few inch raise in my arm my hole life
with out treatment after 10 You will adapt what ever your end limitation are, I think base on being a biker and driving a semi for years with so little use with my erbs
This is your unwritten story and of futures and ability yet not seen , but then there are so many Positive post by so many like US Was this surgery for your hand and grasp?? No clue
I hope you try just squeezing a rubber ball even if its a little overtime you can end up grasping and walking with it. I still do it , sometime I forget it in my hand ,some time I wake up and it still in my hand, It like Worry beads or something
For me that rubber ball idea I got from Easter seals help me a lot to gain grasp even if its over hand
I think Dans slings for resting a arm is a great to Tom