The NIH is conducting a study to examine and compare the function of the upper-limb joints of patients with brachial plexus birth palsy. Patients will be imaged with MRI to create and analyze 3D bone shape and muscle volume of the shoulder. Daily life tasks will be evaluated using 3D motion analysis of the upper-limb joints. In addition, a thorough physical assessment will be performed (range of motion, strength tests, and an upper-limb activity questionnaire).
The information will advance our understanding of patients with brachial plexus birth palsy and improve future patient-specific diagnosis and treatment of this problem.
If you can answer yes to all the following, please consider participating in this NIH study:
Are you between the ages of 5 and 25 years old?
Are you able to participate in an MRI study (e.g., pacemakers, not pregnant, etc...)?
Are you at least 6 months out from any shoulder or upper-limb surgery? Or Botulinum toxin injections?
Are you able to move your affected shoulder at least 30 degrees in front and 30 degrees to the side?
The study requires one to two visits (~ 2 hours each) to the NIH in Bethesda, Maryland. Participants will undergo ultrasound, MRI scanning, motion analysis and a physical assessment.
• Participants will be compensated.
• All study related tests will be provided at no cost.
• Every study participant receives personalized attention.
• This study does not provide clinical films for the participant.
Protocol coordinator: Sara Sadeghi. If there are any family’s who are interested in participating please have them contact Sarah
301-496-9422
NIH study looking for volunteers for BPI study
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: NIH study looking for volunteers for BPI study
HIP HIP HOOOORAY for another study of Teens and Adults with OBPI's!!!!!
Carolyn J
LOBPI/74
Carolyn J
LOBPI/74