SSI

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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gawilliams
Posts: 45
Joined: Sun Oct 31, 2010 12:47 am
Injury Description, Date, extent, surgical intervention etc: Daughter born 8/16/10 has OBPI in the right arm....First surgery(nerve graft) done at 5 months(performed by Dr. Kozin).... four avulsions, one rupture (at the spine)..... As of 4/9/11 still no movement in arm, wrist or hand. As June 2013, bicep, elbow, shoulder function active, flexing with gravity, still no wrist or hand/finger function.

SSI

Post by gawilliams »

Hello,

I recently reapplied for SSI for my 22 month old daughter. She has a ROBPI, with no movement in the wrist, hand, or fingers. She is just really getting her shoulder and some biceps in. My question is, I reapplied (due to a denial the first go around) for SSI and was wondering if the amount they receive would be worth doing an appeal if she gets denied again. Along with her BPI, she has speech delays as well, so hopefully they will take that into consideration. I was wondering if anyone who knows or has a child that receives SSI for their child with this disability could give me an average estimate on how much they would receive. I just wanted to know would it be worth getting a lawyer involved. Any information would be greatly appreciated. Thank you in advance.

~ Alexis
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: SSI

Post by Carolyn J »

I'm going to try to Bump up a b ig topic thread on SSI. I hope it works...
Carolyn J
LOBPI/74 ...YIKES! 8-)
gawilliams
Posts: 45
Joined: Sun Oct 31, 2010 12:47 am
Injury Description, Date, extent, surgical intervention etc: Daughter born 8/16/10 has OBPI in the right arm....First surgery(nerve graft) done at 5 months(performed by Dr. Kozin).... four avulsions, one rupture (at the spine)..... As of 4/9/11 still no movement in arm, wrist or hand. As June 2013, bicep, elbow, shoulder function active, flexing with gravity, still no wrist or hand/finger function.

Re: SSI

Post by gawilliams »

Thanks, I appreciate it.
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