My name is Layne and I have 4 kiddos... Ian is almost 9 and suffered a severe BPI at birth. For those who have been around for a while, it's good to be back... we pretty much took a much needed break from everything for a while. we lived in AZ, then moved to Texas to be closer to Ian's doctor, after he passed away we started seeing Dr. Kozin. Ian has had two surgeries thus far, and probably will need more when he is bigger and stronger. I look forward to reconnecting with those of you I haven't seen for a while, and meeting new people as well.
Layne
It's been a while...
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rebeldiamondgurl
- Posts: 2
- Joined: Wed Jun 08, 2011 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: Ian was born in 2002 with complete avulsions at C5, C7, C8 &T1. C6 was partially avulsed. He also has Horners Syndrome. He underwent Primary surgery in Jan 2003, at Texas Childrens Hospital and "mod quad" at Texas Children's in June 2003. After the TCH BPI Clinic was dissolved, we continued to see Dr. Shenaq until he passed away; after his passing we went to Dr. Kozin. We had a very difficult time finding good therapy after we moved from AZ, and it was suggested that we take a break. We are currently contemplating a move back to AZ so we can be close to a good therapist. Ian will probably need the gracillis transfer at a later date, but needs more function in order to be strong enough.