Medical update from Carolyn J...LOBPI/72+++

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Medical update from Carolyn J...LOBPI/72+++

Post by Carolyn J »

Gramma Carolyn J broke her Left CP leg[Left upper shoulder arm & Hand is LOBPI aka Erb's Palsy], on 3/19 & need surgery to implant a pin on Monday the 11th in the leg. Will be laid up 'til @ June. HomeBound due to Medicare HomeHealth Orders or I loose the Services of OT, PT,& Bath Person & SOMETIMES an RN.
Prayers Please.
Huggz to all,
Carolyn J 8-) :mrgreen:
LOBPI/72++++
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jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: Medical update from Carolyn J...LOBPI/72+++

Post by jmar »

hope you get healed up soon.
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gawilliams
Posts: 45
Joined: Sun Oct 31, 2010 12:47 am
Injury Description, Date, extent, surgical intervention etc: Daughter born 8/16/10 has OBPI in the right arm....First surgery(nerve graft) done at 5 months(performed by Dr. Kozin).... four avulsions, one rupture (at the spine)..... As of 4/9/11 still no movement in arm, wrist or hand. As June 2013, bicep, elbow, shoulder function active, flexing with gravity, still no wrist or hand/finger function.

Re: Medical update from Carolyn J...LOBPI/72+++

Post by gawilliams »

Im praying for you.... please get better soon. :)
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Medical update from Carolyn J...LOBPI/72+++

Post by Carolyn J »

Surgery date on Monday 3/11 to implant a screw/pin in my left CP leg [Upper shoulder arm & leg is LOBPI]
"I have a Combo" injuries...and a new cast.I'm betting I'll not have the cast off 'til June :(
I'm getting good tips from my PT with HomeHeath Services.
HUGGZ
Carolyn J
LOBPI/72++++
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siobby
Posts: 28
Joined: Sat Mar 05, 2011 7:26 am
Injury Description, Date, extent, surgical intervention etc: My son was born 14/10/10 with shoulder dystocia as a consequence has brachial plexus palsy of the left side. He has no elbow flexion or supination. Exploratory surgery on 30/03/11 found significant neuroma's to C5 & C6. Nerve Grafts were required and we are now anxiously awaiting results.
Location: Brisbane

Re: Medical update from Carolyn J...LOBPI/72+++

Post by siobby »

we hope you get well soon

Hugs
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blueelmmo
Posts: 7
Joined: Tue Feb 01, 2011 12:46 am
Injury Description, Date, extent, surgical intervention etc: ROBPI
Location: Warwick, New York

Re: Medical update from Carolyn J...LOBPI/72+++

Post by blueelmmo »

I'll be praying for you Gramma Carolyn. I saw your post on facebook and decided to see if you said something about your surgery here on UBPN Message board :)
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Medical update from Carolyn J...LOBPI/72+++

Post by Carolyn J »

Hello BLueelmo,
Elmo is my FAV. Muppet I hope to get his sticker on my next cast on monday.

Please come here often. We learn from each other and I am still learning! 8-) :mrgreen:
Gramma Carolyn J
LOBPI/72+++
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User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:
Contact marieke

Re: Medical update from Carolyn J...LOBPI/72+++

Post by marieke »

Good luck!!
hugs and love!
marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Medical update from Carolyn J...LOBPI/72+++

Post by karategirl1kyu »

feel better carolyn!!!! i hope it goes well for you!!!
~Mel/23/LOBPI
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Medical update from Carolyn J...LOBPI/72+++

Post by Carolyn J »

I'm Back home and will be staying put until dr's app't on the 22nd. i'll have another cast then for another period of time. It was necessary to put a rod in the bone to keep the parts attached...it will be staying there.
Huggz,
Carolyn J
LOBPI/72
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