Hello BPI Family!
SAVE THE DATES:
Camp UBPN 2012 will be held on (Drum Roll)................... Sunday, July 22, 2012- Wednesday, July 25, 2012!!!!!! We will have it at the same location as UBPN 2010 - YMCA Trout Lodge in Potosi, Missouri.
We know that the Trout Lodge was beautiful when we went last year in October, but the summer time is more convenient for families with children in school. Also, the lake will be open for several water activities!! As last year, our goal is to have a quality camp that is as cost effective for families as possible. The only way we could keep that a reality was to hold camp during the week. With this much advance notice, we hope families will be able to utilize vacation time for this important event!
As you can read in previous posts, camp is not just beneficial for children with brachial plexus injuries, but for the whole family, and also our injured adults.
Registration will open in July 2011, so more information will be released closer to that time.
We look forward to seeing you at Camp UBPN 2012.
Anise Braggs- Camp UBPN Co-Coordinator
Claudia Strobing- Camp UBPN Director
Camp UBPN 2012 Save the Date
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Camp UBPN 2012 Save the Date
Last edited by mamaofsix on Wed Feb 02, 2011 1:40 pm, edited 1 time in total.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Camp UBPN 2012 Save the Date
THANK YOU,Anise, Claudia, and Board of Directors for this advance notice!!!!!!!!!!! 
B-I-G HUGS to you all !
Carolyn J
B-I-G HUGS to you all !
Carolyn J
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Camp UBPN 2012 Save the Date
I'm looking forward to it. The first camp I missed was last year. Can't wait to see the Camp I heard so many good things about. Thanks for getting this information out so early.
It was nice of you to plan it so that I arrive home on my granddaughters 18th Birthday... OM-Goodness... I would hate to have to miss camp. Now I don't have to because we will be back in time to celebrate.
It was nice of you to plan it so that I arrive home on my granddaughters 18th Birthday... OM-Goodness... I would hate to have to miss camp. Now I don't have to because we will be back in time to celebrate.
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Camp UBPN 2012 Save the Date
I won't be able to register until much later in 2011 or even in 2012... what happens then? I mean, what if it fills too quickly for those of us who need to possibly save money and/or figure out work schedules? I just don't want to miss out 
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: Camp UBPN 2012 Save the Date
Hi Marieke,
Unfortunately, we can't guarantee space until registration. A non-refundable registration fee is due at registration and full payment deadlines will be released in July 2012. If you are concerned about space, you can register when registration becomes available, and hopefully you will have a definite answer by the full payment deadline. This way your space will be held. It was a pleasure meeting you at the last camp and I hope to see you in 2012!
Thanks,
Anise Braggs- Co-Coordinator
Camp UBPN 2012
Unfortunately, we can't guarantee space until registration. A non-refundable registration fee is due at registration and full payment deadlines will be released in July 2012. If you are concerned about space, you can register when registration becomes available, and hopefully you will have a definite answer by the full payment deadline. This way your space will be held. It was a pleasure meeting you at the last camp and I hope to see you in 2012!
Thanks,
Anise Braggs- Co-Coordinator
Camp UBPN 2012
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Camp UBPN 2012 Save the Date
I am in the same boat like Marieke was planning on next years taxes to pay for everyones way! If we can pre register and pay deposit how much of a deposit is it? If it is a pretty resonable one I can handle and go ahead and register and pay off with next years taxes. Almost my entire family is going next year so we are really looking forward to it and want to guarantee a spot for us!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Camp UBPN 2012 Save the Date
Bridget,
I can't wait to meet You ,Brayden and all of My Adopted Grands!!!!! I want a picture of Brayen please for my "Grands Collage" to hold me 'til Camp and to keep me smiling every morning.
Hugs all around my BPI Family,
"gramma" Carolyn J
LOBPI/72+
I can't wait to meet You ,Brayden and all of My Adopted Grands!!!!! I want a picture of Brayen please for my "Grands Collage" to hold me 'til Camp and to keep me smiling every morning.Hugs all around my BPI Family,
"gramma" Carolyn J
LOBPI/72+
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Camp UBPN 2012 Save the Date
I can't wait to meet you too! And yes you can have picture! There are several on my facebook page you can get from there or I can send by email or mail! Just let me know! Looking forward to meeting you in person!
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: Camp UBPN 2012 Save the Date
is potosi near st louis or branson? i might go if i can drive there. st louis is only about a 3 or 4 hour drive from here.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Camp UBPN 2012 Save the Date
Bridgewt, I sent you a message here on UBPN...
HUGS GALORE,
Gramma Carolyn J
LOBPI/72+
HUGS GALORE,
Gramma Carolyn J
LOBPI/72+