fever and pain
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: fever and pain
Thank you Carolynn for finfing this for me! This has been really helpfull!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: fever and pain
Your're welcome! I'm sooo happy it helps! 
HUgs all around your house,
Gramma Carolyn J
LOBPI/72
HUgs all around your house,
Gramma Carolyn J
LOBPI/72
Carolyn J
Adult LOBPI
Adult LOBPI
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AmberNicole0292
- Posts: 3
- Joined: Thu Jan 13, 2011 3:25 pm
- Injury Description, Date, extent, surgical intervention etc: Brachial Plexus on right arm due to birth.
- Location: Bay Area, CA
Re: fever and pain
I get Shooting pain in my arm and hand it hurts so bad all i want is pressure i get the pain when i start getting sick and if the weather changes and gets really cold I tried explaining it to my doctors and they don't understand.
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anotherbpimom...
- Posts: 49
- Joined: Thu Mar 05, 2009 1:11 am
Re: fever and pain
Same thing with us. All the stuff you guys described. Mine is 3 1/2 yo now. She is beginning to ask me to do something for her pain when it strikes and I am at a loss... Any suggestions? I've taken her to pain "specialists" who have seen her at appointment times which don't coincide with her episodes of pain. "The child seems fine..." (Oh, don't even get me started!!) Now that she's getting older and can communicate and process info differently (and describe more clearly), I'm also noticing behavioral issues related to this.
I can't even begin to describe how pissed-off I am about every single thing related to this whole ordeal! From a mother's standpoint, social standpoint(a sense of personal-responsibility seems to be lacking in this day and age), medical, legal and...
Unnecessary hell.
I can't even begin to describe how pissed-off I am about every single thing related to this whole ordeal! From a mother's standpoint, social standpoint(a sense of personal-responsibility seems to be lacking in this day and age), medical, legal and...
Unnecessary hell.
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: fever and pain
i know this topic is about childrens fever, but i have had my injury for 8 months. the past 2 or 3 months, i have had no pain meds because the pain is not that bad any more. oh i still have pain, but not bad enough for meds. last week, i went through several ordeals that were extremely stressful. my arm hurts so bad i have been taking pain meds again. i think stress does make it worse. whether you were born with this as a birth defect or as a trauma as an adult.
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: fever and pain
jmar, just to correct this: a birth injury is NOT a birth defect. This is a very specific thing and should not be confused as such.
Yes, stress, illness, other injury can all increase pain. As can weather changes and when girls are older menstruation.
When her arm hurts you can try applying pressure to it, this helps me and I know others have said so too..
Yes, stress, illness, other injury can all increase pain. As can weather changes and when girls are older menstruation.
When her arm hurts you can try applying pressure to it, this helps me and I know others have said so too..
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: fever and pain
sorry marieke. i have so many people in my family with birth defects (lesch-nyhan syndrome, heart defects, etc), i just automatically say birth defects. i am well aware of this being an injury. it is just very common for me to talk about birth defects. sorry. as a matter of fact, my nephew just passed away this past week from lesch-nyhan syndrome. i am extremely saddened by the loss of this wonderful man. his funeral was yesterday. so, yes i have been discussing birth defects a lot lately. sorry for the rambling. i am just upset right now.