***Updated*** Ive Got an Appointment with Dr. Kozin

[gawilliams]

Thanks everyone. I spoke with Dr. Kozin through email and he advised us to hold off on the MRI until he examines her.

[Damians Mom]

I am in the process of trying to get a referal to DR Kozin I have read nothing but amazing things about him. I myself had no luck with any of the doctors I have seen for my son and he is now almost 8. We are from Canada and there seems to be very little knowledge about brachial plexus injuries here. I wish you luck with your appointment with DR Kozin and hopefully he has great news for you. Hopefully we will also have that luck as the process may take a bit longer since we are Canadian residents, but we just have to keep our heads held high and fight for our kids.

Good Luck
Damians Mom

[gawilliams]

Thank you for your response. You are right, we have to be an advocate for our children. I had my doctor do a referral to the hospital and i called up there and scheduled my own appointment. Good luck with you and you and your son. I really hope nothing but the best for you. I know this is difficult.

I am in the process of trying to get a referal to DR Kozin I have read nothing but amazing things about him. I myself had no luck with any of the doctors I have seen for my son and he is now almost 8. We are from Canada and there seems to be very little knowledge about brachial plexus injuries here. I wish you luck with your appointment with DR Kozin and hopefully he has great news for you. Hopefully we will also have that luck as the process may take a bit longer since we are Canadian residents, but we just have to keep our heads held high and fight for our kids.

Good Luck
Damians Mom

[Careesta]

I can not tell you how WONDERFUL Dr. Kozin is. Since my daughters whole experience, she has been terrified of Doctors. It was so bad that when we would pull in for therapy she would start to vomit. I was so worried about traveling to Dr. Kozen and how she would react, but he made her feel comfortable. She stopped being nervous the minute he started talking, it was great!! He is honest and won't tell you what you want to hear, he will tell you the truth.

Please update after you see him.

[gawilliams]

Thank you for your response. I keep hearing nothing but great things about Dr. Kozin. We will see him next Thursday. (wow, i cant believe it has come so soon). I am glad I was able to find out about Dr. Kozin, based on all of the good things I have read and have been told about him. Im glad he will tell us the truth no matter what. That is comforting. If you dont mind me asking, what was the severity of your daughter's injury? What has been done so far and how old is she?

I can not tell you how WONDERFUL Dr. Kozin is. Since my daughters whole experience, she has been terrified of Doctors. It was so bad that when we would pull in for therapy she would start to vomit. I was so worried about traveling to Dr. Kozen and how she would react, but he made her feel comfortable. She stopped being nervous the minute he started talking, it was great!! He is honest and won't tell you what you want to hear, he will tell you the truth.

Please update after you see him.

[Carolyn J]

Don't forget to take care YOURSELVES, WARRIOR MOMS!!
"Bossy "Gramma" Carolyn J
LOBPI/72 yrs young

[mclarkwalker]

Dr. Kozin was the first specialist that we saw with our daughter, Catherine who has a robpi. She had no movement in her right arm until 3 months and we saw him at 6 months. I would definitely make sure to send all of your OT records in advance of your visit. Dr. Kozin and his staff are just wonderful and patiently sat with us and answered all of our questions during our visit. I'm so happy for you and your daughter. You will be in very good hands!

[gawilliams]

I cant believe it. We got an appointment with Dr. Kozin for Dec. 9th. I am so excited to get a 2nd opinion. The Orthopedic she is seeing now seems so negative. He acts as if there is no hope for her. He didnt even examine her today. He just said "well I dont see any movement " and I told him that she has been moving her shoulder, you just cant see it that well when she has her clothes on. He is so vague. Then he stabbed my heart when he said, "if the injury is in her neck, there is nothing that can be done." I asked about surgery, and he says there is no point because the results arent that good. Then he says," well they have 18 months if they need surgery." Now everywhere that I have read says if surgery is needed, it needs to be done in the first 12 months. I honestly feel he isnt working for us, because we have medicaid. I cant help that, I was laid off from my job in April (4months pregnant), I had to get it. Well, he has scheduled an EMG (nerve study) which is tomorrow and a MRI on Dec. 2nd. After that is done, Im looking for someone else locally. I hope everything goes okay. Her OT seems to be happy with her progress, just because its a slow process. Right now she just has shoulder movement and she is 3 months old. We are just praying everything will get better. Sorry, I know this was suppose to be about the appointment, but I had to vent. Thanks.

***Update***
Well, we took Lauren to see Dr. Kozin. It appears she has a Global Brachial Plexus Injury, per Dr. Kozin. We really liked him. He was upfront about her injury, though it was hard to hear even after expecting the worse. She will need surgery to see how severe her injury is and if they are able able to, will have nerve graft surgery . I will keep this updated, as well as my blog. http://lotsofloveforlauren.blogspot.com/

[Carolyn J]

Be Strong as you are able, MOm. Take Care of YOURSELF 1st. And come here often. WE are here for you and understand every step you are at.
HUgs all around your house,
"Gramma" Carolyn J
LOBPI/72

"many things have tangled my feet, but nothing has held me fast." anon.