prognosis

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

prognosis

Post by jmar »

i was wondering if any one knows about how the brachial plexus nerve heals. can or will it heal completely? if it does heal completely will there always be somewhat of a problem with it or if it heals it is healed? does any one know of someone who has this type of injury that healed and if so how much did it heal and did they still have stiffness, shrunken muscles, or weakness? i am still new at this and i have a feeling it will get better but not back to normal. i am 4 months into this and my fingers are getting extremely stiff and i still have no feeling in my arm. i do excercises constantly and still feeling like i am losing ground.
gimpyfireman2010
Posts: 23
Joined: Fri Jul 16, 2010 12:15 pm

Re: prognosis

Post by gimpyfireman2010 »

You need to have emg's done! If you need surgery it should be done asap. I'm 4 months post injury and have had 2 transfers done.
tkirkland
Posts: 55
Joined: Tue Mar 31, 2009 9:46 am
Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
Location: Rockland County, New York

Re: prognosis

Post by tkirkland »

It really depends on the degree of damage that was done (if the nerves were stretched, ripped or completely torn out). You have to get an EMG and I strongly urge you to do that soon. You she see a Nuerologist (preferably one that speicilizes in BPI). There is a time limit when working with nerves and their ability to heal. God Bless!
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: prognosis

Post by jmar »

has anyone ever heard of dr todd shanks in louisville, kentucky? he is a bpi specialist but i want to know at least a litle bit about him. i am going to see him and it is about a 2-hour drive. don't know when yet.
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bfaithda
Posts: 88
Joined: Fri Jul 20, 2007 10:40 pm
Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
Location: Owensboro, KY

Re: prognosis

Post by bfaithda »

I live in Owensboro, KY 2 hrs from Louisville. My son, who is 3, was injuried at birth. I have never heard of a BPI doctor in Louisville. We have been to St. Louis and Cinncinatti. When he was injured we were told we had to go out of state. I would really research this doctor!
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: prognosis

Post by jmar »

i am so angry at my doctor right now. when i woke up from surgery on may 18, my arm was very limp and extremely painfull. the doc told me he pulled the bp nerve and not to worry about it it would return in a couple of days maybe a month or so. now it is 4 months later and although there is a lot of improvement in my arm, i still have very little use of my hand. now he is telling me it will be at least a year before i get function back in my hand and my pinkie will always be numb. and also my arm and hand will continue to shrivel and will always be smaller than the right one. has this happened to any one else?
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