My husband and I will be coming to camp! Yea! I am really looking forward to it...being able to meet other adults who've live with this injury like I have (until I found UBPN, I felt very alone!)...being able to encourage the kids that they can do ANYTHING they set their minds to do....
But my husband is wondering if there will be activities for the spouses. I suggested he try to organize a "bull session" with some other spouse about things like how they cope with having a spouse with limitations, dealing with the fact that some of us live with various types of pain on a regular basis, how to know when to help and when to leave us alone and let us do it ourselves, etc...
I think it would be a good idea since many of them sort of got thrown into this other world. I'm not saying the rest of us didn't, but when it is yourself or your child, you will ask the questions and find the resources to get what you need. For some of us who have lived with BPI injuries all of our lives it is sometimes difficult - or just simply draining - to try to explain the injury or how we've learned had to cope with it - much less what they should or shouldn't do to help us - to others, even those we love.
Any other spouses that migt be interested in a session like that? Could we get it on the schedule of events?
Spouses at Camp?
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LJSL0330
- Posts: 52
- Joined: Wed Feb 27, 2008 9:09 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. Only surgical intervention was muscle lengthening at 2-3 y/o. PT at 35 which increased passive ROM by did not improve active ROM. Also have scoliosis due to left shoulder "hiking."
- Location: Evansville, Indiana
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Spouses at Camp?
THere was a "BULL SEssion" of Spouses at CAMP 2007...i heard it was a hit. They also had a Sibling session too & alto my son was not a Sib he got alot from it and shared his feelings...also made friends.
Carolyn J
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Spouses at Camp?
Here is a silly question so after the fact...but is camp $170.00 per night??
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Spouses at Camp?
Karan,
I suggest you post your question on "CAMP 2010"....
Have a great time!
Carolyn J
I suggest you post your question on "CAMP 2010"....
Have a great time!
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Spouses at Camp?
No, the $170.00 is for the whole stay, plus the fee for Camp itself $247, $40 for registration, $40 for bus transportation is needed from airport...
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Spouses at Camp?
Thanks for being on the ball this morning,Marieke!! 
(((((HUGS))))
Carolyn J
(((((HUGS))))
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Spouses at Camp?
There was a Spouse workshop and it was very casual and the feed back was good. My husband (Ralph) ran it and said it was good. The men don't seem to be as concerned about our arms as we are. They don't fully understand the full impact and possible future impact, that being one handed brings to our lives.
This is the first camp I will miss since UBPN held them. Ralph and I worked at them and now this year I'd be just a guest and we won't be there... LOL.. It is a great experience for your husband and it's eye opening.
You will both enjoy it and it will be sooooo very healing for you. You will be with people who understand your frustrations without having to say a word. Enjoy yourself!
This is the first camp I will miss since UBPN held them. Ralph and I worked at them and now this year I'd be just a guest and we won't be there... LOL.. It is a great experience for your husband and it's eye opening.
You will both enjoy it and it will be sooooo very healing for you. You will be with people who understand your frustrations without having to say a word. Enjoy yourself!
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: Spouses at Camp?
i vote yes