North Carolina Friends (non brachial plexus)

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: North Carolina Friends (non brachial plexus)

Post by Kath »

Louise
I'll be praying for his safe return.
Have you put this up on FB? Then maybe friends can repost that may help track and locate him.
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: North Carolina Friends (non brachial plexus)

Post by Carolyn J »

Louise, I'll be praying for him too.

HUGS,
Carolyn J
Carolyn J
Adult LOBPI
s8n
Posts: 223
Joined: Wed Jun 04, 2008 11:51 am

Re: North Carolina Friends (non brachial plexus)

Post by s8n »

ouch...sorry to hear that. i'll be thinking of you and yours. i know that feeling all to well. you have my sympathy in this time of your mourning. keep you and yours safe. :(
daniel
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