1923 article
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
1923 article
article from 1923 50 case review
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ironmansmom
- Posts: 92
- Joined: Sun Jul 27, 2008 7:15 pm
Re: 1923 article
very interesting article...thanks for sharing!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: 1923 article
This is soooo amazing.
As I read this article I kept reminding myself that this was written in 1923. No wonder my mother went from doctor to doctor to get advice and got nothing. She took me to several New York hospitals before she ended up at New York Hospital and I was braced immediately and kept in one for 11 months. The brace was only taken off for massage and ROM... I did not hand to mouth by three months in fact still don't have it.
I'm a bit upset because this information was out there and NO ONE ACTED ON IT. If they had, we would not all be here.
Even then they knew the cause of this injury was traction.
As I read this article I kept reminding myself that this was written in 1923. No wonder my mother went from doctor to doctor to get advice and got nothing. She took me to several New York hospitals before she ended up at New York Hospital and I was braced immediately and kept in one for 11 months. The brace was only taken off for massage and ROM... I did not hand to mouth by three months in fact still don't have it.
I'm a bit upset because this information was out there and NO ONE ACTED ON IT. If they had, we would not all be here.
Even then they knew the cause of this injury was traction.
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: 1923 article
Kath:
You are right, this is soooooooooo amazing.
They knew in 1923 to do neuro and ortho repair (so much for Oxford telling us that Juliana's nerve grafting was "experimental")...
But, totally infuriating, is that they knew that it was the obstetricians and their traction.....
claudia
You are right, this is soooooooooo amazing.
They knew in 1923 to do neuro and ortho repair (so much for Oxford telling us that Juliana's nerve grafting was "experimental")...
But, totally infuriating, is that they knew that it was the obstetricians and their traction.....
claudia
Re: 1923 article
My understanding was that nerve repair was "in vogue" for awhile early in the 1900's, but the results were not consistently very good, anesthesia was still quite risky, grafting was poorly understood and babies died or didn't get better far too often (for instance, out of 70 patients operated on in one report, 3 died). Surgeons also only generally did neurolysis (neuroma removal) and not grafting, which is another reason why results were not as good and thus not worth the risk. Nerve surgery stopped being perfomed around 1930 and didn't start up again until microsurgical techniques came along, and the first child actually received nerve grafts in 1977. She was 4 years old and (not surprisingly) didn't get very good results.
Most of this information comes from the paper "Obstetrical Palsy: The French Contribution" by Alain Gilbert and Giorgio Pivato, SEMINARS IN PLASTIC SURGERY/VOLUME 19, NUMBER 1 2005
Kate
Most of this information comes from the paper "Obstetrical Palsy: The French Contribution" by Alain Gilbert and Giorgio Pivato, SEMINARS IN PLASTIC SURGERY/VOLUME 19, NUMBER 1 2005
Kate
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: 1923 article
Articles such as this one make my blood pressure shoot wayyyyy up and such ANGER boils up from somewhere deep down in me. I know I am not the only person who grew up and suffered greatly on many different levels all of my life..(.I am 71+++++). This really SUCKS!!!!!!!!!!!!!
Carolyn J
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI