any docs reading our boards?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

any docs reading our boards?

Post by richinma2005 »

Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: any docs reading our boards?

Post by Carolyn J »

INDEED Rich!!!! Bless you for posting this. There is always someone suffering more than we are.
God Bless YOU and your family this Easter!

Mother Theresa said: "If you cannot help everyone, help one."

HUGS,
Gramma Carolyn J/71 :)
Carolyn J
Adult LOBPI
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: any docs reading our boards?

Post by marieke »

Have they tried contacting the Shriner's Hospital? I know the one where I live in Montreal does international kids for free.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: any docs reading our boards?

Post by katep »

marieke wrote:Have they tried contacting the Shriner's Hospital? I know the one where I live in Montreal does international kids for free.
Unfortunately, Shriners Hospitals have been hard hit by the recession and reduction in giving. As of April, 2009, they stopped taking international kids, at least for now :cry:

http://www.shrinershq.org/Admission/

"The service area of Shriners Hospitals for Children® includes the United States (including Puerto Rico), Canada, the Republic of Panama and Mexico. As of April 2009, we are temporarily not accepting new patients residing outside of these areas."

Kate
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: any docs reading our boards?

Post by Carolyn J »

Bummer !...thanks Kate
Carolyn J :mrgreen:
Carolyn J
Adult LOBPI
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: any docs reading our boards?

Post by katep »

I hate to be the bearer of that kind of news! I read it on an adoption board I'm on and was extremely saddened. I hope that this economy recovers soon!!
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: any docs reading our boards?

Post by marieke »

That really does suck! Man, when I had surgery there at age 14 I made friends with 2 American's, one girl form Poland and one from Antigua!
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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