what to say when people are insensitive...

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: what to say when people are insensitive...

Post by karategirl1kyu »

If someone asks me nicely i tell them, i implied from the question that they were asking in a rude way... so yeah... oops!
~Mel/23/LOBPI
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: what to say when people are insensitive...

Post by marieke »

Rude or not.. Kill'em with kindness! They usually feel like idiots then and at the same time you get to educate one more person.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
rchapin
Posts: 4
Joined: Fri Feb 19, 2010 11:03 pm
Injury Description, Date, extent, surgical intervention etc: Born 1970. Erb's palsy, left arm affected. Quad surgery age 2. Overhead cast used. Saro was not invented yet.

Re: what to say when people are insensitive...

Post by rchapin »

I'm a straight shooter, so if someone asks me about it, I tell them the truth behind it.
katep
Posts: 1240
Joined: Mon Mar 29, 2004 3:20 pm

Re: what to say when people are insensitive...

Post by katep »

In my experience, the people who are the least tactful in asking questions like this usually have some personal experience they wish to discuss. Like the man on the airplane who bluntly asked about Joshua's post-ACR cast, and turns out he was in a similar cast as an adult from a ski accident and just couldn't fathom how a child could have been injured in the same way. Or the grandmom of a child who had cerebral palsy and was wondering if that was what Joshua had. Or the sister of a mom whose child had been similarly injured at birth.

People who are in a hurry to get to "the real conversation" often are the ones who are the least thoughtful when it comes to initiating the conversation. But in my experience, those subsequent conversations have been well worth putting up with the initial blundering into them.
anotherbpimom...
Posts: 49
Joined: Thu Mar 05, 2009 1:11 am

Re: what to say when people are insensitive...

Post by anotherbpimom... »

Thanks for all your replies. I do try to educate people and be positive (and have been), and I agree with the responses in the context of how I explained it. There are people who ask kindly, but I should have explained more thoroughly that the ones that drive me crazy say "what's wrong with her?" in a mean and rude way, -right in front of her. -Like she's a weird circus freak. My daughter is only 2 1/2, but I can see her change from a smile to a hurt look in a nanosecond. She backs away, puts her head down, and tries to get me to immediately walk away with her. What I FEEL LIKE saying on those rare occasions is: "My daughter may only be 2 1/2 years old, but she is very bright, kind and sweet. You on the other hand may want to take a better look at what's wrong with you." ...Like I said, SO FAR, I've been kind and positive back...
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: what to say when people are insensitive...

Post by Mica »

I've come up with a practiced response when people ask like that. I say: "Children are no less deserving of respect than adults. I'm sure your intent was not to be cruel. Would you like to rephrase your question?" I figure this will let them know that it isn't the asking itself that is wrong, but the way they are asking.

I am sorry people have hurt your little girl.
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: what to say when people are insensitive...

Post by marieke »

Mica,
I love that answer!
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: what to say when people are insensitive...

Post by Mica »

Marieke,

I came up with that - and practiced it in front of a mirror so it would actually come out of my mouth under pressure - after skinning a few people alive for being insensitive. I'll bet there are a few in our town who hide when they see me!
anotherbpimom...
Posts: 49
Joined: Thu Mar 05, 2009 1:11 am

Re: what to say when people are insensitive...

Post by anotherbpimom... »

Oh, Mica, I love your answer. With your permission, I'm going to TRY to use that. Thank You! -And all the other comments and support is greatly appreciated too! ... I'm so grateful for this special place to come to for anything from concerns to triumphs.
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: what to say when people are insensitive...

Post by Mica »

Go for it! But really - you might want to practice it in front of the mirror. I even practiced it in front of my husband!!! When someone says something that hurts my child, this horrible monster comes out and I become the scariest person in the world! Practicing it gave me more control.
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