So I am completely new at all this. I am 23 and was born with Erb's, but due to where I was born there was very little information on the injury. I am excited to finally get to talk to others with Erb's and if anybody would like to share their story with me that would be fantastic. I can't wait to talk to others and share my story with others who understand what I'm talking about!
Brittany
I'm new! Teach me everything!
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Bvascik
- Posts: 4
- Joined: Thu Feb 04, 2010 7:40 pm
- Injury Description, Date, extent, surgical intervention etc: I was born with Erb's Palsy back in 1986. I was born in Anchorage, Alaska so not much was known about the injury and doctors had little knowledge of how to treat it. I don't know a whole lot about my injury, such as what severity of an injury it is. I am certain there was no tearing. I was born paralyzed in the left arm, but with the help of a lot of physical and occupational therapy I have almost full usage of my arm. It is actually very difficult for people to notice the injury, but I can see and "feel" the difference. I have scapular winging and can't supinate my arm hardly at all. My parents were never told about groups to get in touch with so we knew nothing about how to treat it and surgery was never an option because we didn't know they were even available. I am basically here to learn more about this injury and to finally have people who understand it to talk to.
- Location: Palm Coast, Florida
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: I'm new! Teach me everything!
Hi,
Welcome to the site!
Feel free to ask any questions, and as Carolyn says "there are no dumb questions"!
Welcome to the site!
Feel free to ask any questions, and as Carolyn says "there are no dumb questions"!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: I'm new! Teach me everything!
WELCOME BRITTANY!!!! to our UBPN Family. There are tons of love,support , information here on these Forums...not to mention instant understanding. And yes, like Marieke said, There is no such thing as a dumb question!! Soooo ask away, we adults prefer to answer questions , or, you can begin to read the "Resources" link for Adults with OBPI aka Eb's Palsy.
Especially important is start saving your "Good" arm and shoulder from over-use Now.
Especially important is start saving your "Good" arm and shoulder from over-use Now.
Carolyn J
Adult LOBPI
Adult LOBPI
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luckyfin
- Posts: 4
- Joined: Mon Apr 27, 2009 3:09 am
- Injury Description, Date, extent, surgical intervention etc: Left OBPI
Re: I'm new! Teach me everything!
Welcome to the family Brittany.
I've come & gone on these boards and am hoping to stay here & not drift away again. Like others have said, ask any questions you have so we can all get to know each other.
I've come & gone on these boards and am hoping to stay here & not drift away again. Like others have said, ask any questions you have so we can all get to know each other.
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: I'm new! Teach me everything!
Welcome Brittnay,
Glad you found us! I dont knw what info to share so I will just share with you my personal website. I have a journal on there (it needs updating but I will do that in a week when I turn 23) Feel free to check it out and read what you like.
www.freewebs.com/bpimn
also I am open to any and all questions so ask away if you have something on your mind!
Amy 22 years old From MN
Glad you found us! I dont knw what info to share so I will just share with you my personal website. I have a journal on there (it needs updating but I will do that in a week when I turn 23) Feel free to check it out and read what you like.
www.freewebs.com/bpimn
also I am open to any and all questions so ask away if you have something on your mind!
Amy 22 years old From MN
Amy 28 years old ROBPI from MN
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Jennifer P
- Posts: 220
- Joined: Wed Sep 09, 2009 7:12 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
- Location: Pacific Northwest
Re: I'm new! Teach me everything!
Hi Brittany, Welcome!
I'm 26. What do you want to learn? Most of us talk about how we do things "our own way" and share stories in that aspect. As a matter of fact, that's the theme for this year's UBPN Camp.
I read your profile. You mention that others don't notice but that you can "feel" it. Your situation sounds very similar to mine.
Since you seem to have a lot of movement in your arm I would suggest to remember is to stretch and exercise both your arm and rest of your body to keep your mobility at it's highest. When you use your arm less you are likely to have more pain in the long run. I'm a huge fan of swimming. It's the only sport I enjoy and can actually do.
I recently started going to behavioral and physical therapy and am really enjoying it. She game me a foam roller to use to stretch (something like this http://www.sears.com/shc/s/p_10153_1260 ... 921x00003a).
I'm 26. What do you want to learn? Most of us talk about how we do things "our own way" and share stories in that aspect. As a matter of fact, that's the theme for this year's UBPN Camp.
I read your profile. You mention that others don't notice but that you can "feel" it. Your situation sounds very similar to mine.
Since you seem to have a lot of movement in your arm I would suggest to remember is to stretch and exercise both your arm and rest of your body to keep your mobility at it's highest. When you use your arm less you are likely to have more pain in the long run. I'm a huge fan of swimming. It's the only sport I enjoy and can actually do.
I recently started going to behavioral and physical therapy and am really enjoying it. She game me a foam roller to use to stretch (something like this http://www.sears.com/shc/s/p_10153_1260 ... 921x00003a).