Book from 1869 -Paralysis in infants

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
User avatar
richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Book from 1869 -Paralysis in infants

Post by richinma2005 »

Interesting to see the thoughts from 140 years ago. They were doing electrical stimulation even back then! They talk about active and passive range, pain issues-and some of the suggestions are the same as today. Although many are what would be considered VERY odd! Peruse through and leave any comments you think interesting and page reference...

http://books.google.com/books?hl=en&lr= ... q=&f=false

rich
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: Book from 1869 -Paralysis in infants

Post by Master DIVER TOM »

Sure is a nice big book- I wish the doctors would of used it in the 50s at my birth. I do have a beef you know , now the why at 14 they told me in the 60s there was nothing more they could for my erbs. I did not try to go to see any doctor ever again. It is the way it was. I cant believe so many babies still get this but I am so mad! That many end up with out the need direction after birth or Bpi issue later that have to search so much for the right treatment for the bpi issue and the doctors. I wonder how many doctors use this book today :?:

Tom ;) :D
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Book from 1869 -Paralysis in infants

Post by Kath »

i was injured Nov. 1939 and often wondered why the doctors seemed to know so much as they guided my parents. ROM was started at 2 weeks and brace was designed and made within weeks. I wore Statued of Liberty brace for 11 months and it was taken off and ROM and warm oil massage at least three times a day. I guess someone in NY Hospital was taught how to take care of OBPI (Erbs) babies way back then. It's amazing how much they knew and yet not everyone was given treatments. I was lucky to be born in an area that had access to a major hospital even then.

I notice they spoke about how cold the limbs are. That is still a major problem for me and especially during this time of year.
Kath robpi/adult

Kathleen Mallozzi
User avatar
F-Litz
Posts: 970
Joined: Fri May 26, 2006 6:53 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI, LTBPI at age 6.5, Sensory Issues, CP, Diaphragm Weakness, Aspberger's
Location: Ambler, PA

Re: Book from 1869 -Paralysis in infants

Post by F-Litz »

wow rich - that was some find!! :o

can't wait to go through it page by page

thanks!
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Book from 1869 -Paralysis in infants

Post by Carolyn J »

1869?????!!!!!!
I am working on my "ANGRY"!!!!!!!!!!!!!
I was born in 1938... not 1 right call for my injuries until finding UBPN in 2004.

Talk about living in ignorance n denial.... :twisted:
Carolyn J
Carolyn J
Adult LOBPI
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Book from 1869 -Paralysis in infants

Post by karategirl1kyu »

if it was written in 1869, why is it still something that is not widely known... even though its more common than downs syndrome?? thats one question to ask the medical community!
~Mel/23/LOBPI
Locked