Hi Everyone
its been awhile but things get crazy fast around here. We saw Dr Waters in Boston he is great he felt there wasn't much to do for the elbow at this point he said we should wait till it is causing frankie pain then he would do surgery to remove the ulnar head. Frankie has once again proven you can do anything one handed he has just been accepted as a Jr firefighter at our local firehouse. He wants to be a paid firefighter after college so he thought this would be a good experience.
Mare
Frankie
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Frankie
WAY TO GO, FRANKIE!!!!
Thanks for the update on Frankie, Mare, He'll make a wonderful Fireman one day!
How are YOU doing, Mare?...i miss hearing from you.
HUGS to both of you guys,
Carolyn J
Thanks for the update on Frankie, Mare, He'll make a wonderful Fireman one day!
How are YOU doing, Mare?...i miss hearing from you.
HUGS to both of you guys,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Frankie
I'm doing great finally got used to doing the shots 3 x a week for the MS and had no more problems (knock on wood) I'm also finally relaxed with Frankie driving (he's better then I am ) So all is Great hope the same for you and your family.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Frankie
Mare,
The secret is PACING OURSELVES and putting yourselve at the top of the list each day taking care of ourselves 1st.
I didn't learn that until late 50's...LOL I'm a very slow learner!
HUGS,
Carolyn J
The secret is PACING OURSELVES and putting yourselve at the top of the list each day taking care of ourselves 1st.
I didn't learn that until late 50's...LOL I'm a very slow learner!
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Frankie
Mare
It's so nice to hear from you. Your doing the shots 3x a week. Suz use to get the interferon 1x a week but had the flu 6 days a week from it. She is in an experimental program at Holy Family ... It's a new drug and a pill... only one flare up in 6 months so far.
I'm so glad to hear that Freezing Frankie is doing so well and will soon be on the fire department... Yikes I'm not sure he will love the jackets... You know how some of us hate jackets. Mine is usually sitting on the back seat of my car. I had three of them there last winter. Now I keep one in the car for emergency... LOL....
Hope your feeling good soon and stay well.
Kath
It's so nice to hear from you. Your doing the shots 3x a week. Suz use to get the interferon 1x a week but had the flu 6 days a week from it. She is in an experimental program at Holy Family ... It's a new drug and a pill... only one flare up in 6 months so far.
I'm so glad to hear that Freezing Frankie is doing so well and will soon be on the fire department... Yikes I'm not sure he will love the jackets... You know how some of us hate jackets. Mine is usually sitting on the back seat of my car. I had three of them there last winter. Now I keep one in the car for emergency... LOL....
Hope your feeling good soon and stay well.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
Re: Frankie
Hi Kath
Yes I'm on the rebiff the needles are small and don't go in the muscle like the avonex but yes its 3xs a week. Please tell Suzanne I said hello its been a while since we spoke. Freezing Frankie doesn't have a problem with coats its his mother who hates them I still haven't bought one I just wear sweat shirts. His problem is going to be the left sleeve being to long and getting in the way but I'm hoping I can alter it. Its great to be back in touch and to hear from everyone again
Mare
Yes I'm on the rebiff the needles are small and don't go in the muscle like the avonex but yes its 3xs a week. Please tell Suzanne I said hello its been a while since we spoke. Freezing Frankie doesn't have a problem with coats its his mother who hates them I still haven't bought one I just wear sweat shirts. His problem is going to be the left sleeve being to long and getting in the way but I'm hoping I can alter it. Its great to be back in touch and to hear from everyone again
Mare
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Master DIVER TOM
- Posts: 759
- Joined: Tue May 05, 2009 11:51 am
Re: Frankie
To Frankie,
I am proud of YOU, you are AWSOME
If you like to drive ( learn to drive the FIRE TRUCKS That would be AWSOME TO. . You know I drove semi for years as a CHICAGO Semi Teamster driver. REtired 
I think you might get hired quicker by thinking about driving the rigs?? Think about latter in your job search ,But Thats just me. I would of loved to of drove a hook and latter(Sweet ). I have to say STAY STRONG,you are doing a great job in overcoming what you can 
You got a great mom to !!!
Best wishes and TRYS<
Master Diver Tom
I am proud of YOU, you are AWSOME
If you like to drive ( learn to drive the FIRE TRUCKS That would be AWSOME TO. . You know I drove semi for years as a CHICAGO Semi Teamster driver. REtired I think you might get hired quicker by thinking about driving the rigs?? Think about latter in your job search ,But Thats just me. I would of loved to of drove a hook and latter(Sweet ). I have to say STAY STRONG,you are doing a great job in overcoming what you can You got a great mom to !!! Best wishes and TRYS<
Master Diver Tom
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI