Successful New England gathering!!

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Successful New England gathering!!

Post by richinma2005 »

We had a full house of ~15 families and 60 people come to the Museum of science to hear Dr. Waters, Dr. Kozin, Dr. Bae, Susan Moorhouse (PT) and Attny James Baron (%04/IEP) speak. The view from the suite was amazing of the Charles river and downtown Boston. Some kids dressed up for the costume contest, and we sold UBPN awareness items- as well as making people aware of UBPN and Outreach magazine. The food was great, and the kids were entertained with games and activities by some volunteers. The museum was great as well!

I want to thank everyone for coming! and look forward to the next gathering.

A big thanks to Levine and Associates for sponsoring a successful event!!

Thank you!
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Successful New England gathering!!

Post by Tanya in NY »

Great to hear the event was successful with loads of information and fun to boot! Thanks for spearheading this Rich!

Tanya in NY
Amber's Mom, ROBPI, almost 7 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Successful New England gathering!!

Post by Kath »

Rich

I'm so happy to hear you had such a good turn out.
Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Successful New England gathering!!

Post by Carolyn J »

BRAVO!!! I wish I could've seen all the cuties in their costumes!
Lucky families!!
Carolyn J
LOBPI adult/71
Carolyn J
Adult LOBPI
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