Requested The Doctors do a show on bpi prevention

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Requested The Doctors do a show on bpi prevention

Post by Kath »

Please vote for show on Preventing Brachial Plexus injuries in newborns.
http://www.thedoctorstv.com/produce/idea_comment/881
The doctors have a place to suggest programs. I put up a suggestion that they do a show on Shoulder Dystocia and preventing brachial plexus injury.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Requested The Doctors do a show on bpi prevention

Post by patpxc »

Ok, I registered,got the confirmation, log in 10 or 15 times. I shows I am logged in but when I go to vote, it says please log in. I'll try again later. Weird, my user name is showing at the top of the screen too. Hmmmm
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Requested The Doctors do a show on bpi prevention

Post by Kath »

Pat
When you registered did you use the link in the email they sent you? I had a similar problem when I first tried to post my suggestion. I checked my email and used that link to activate my account.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Requested The Doctors do a show on bpi prevention

Post by patpxc »

Have they made a decision on this yet? Did we win?
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Requested The Doctors do a show on bpi prevention

Post by marieke »

I don't think it works that way.. it goes by points and some topics have thousands of points!

I think it's a way for them to get ideas as well for what the public wants to see.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Requested The Doctors do a show on bpi prevention

Post by patpxc »

Oh, I understood that the Dr's would do a show on the sites with the greatest number of votes. Sorry. My mistake
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Requested The Doctors do a show on bpi prevention

Post by marieke »

I figure they may, but so many topics are posted and many have TONS of votes... i would think they also look through the rest of the topics suggested as well.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
kimanddavid@lafayettela.com

Re: Requested The Doctors do a show on bpi prevention

Post by kimanddavid@lafayettela.com »

After my daughter had the Modquad surgery in August, I actually got on their site and entered info about BPI! I totally agree they need to do a show about it!!!!!
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