Surgery has any one had any success
Re: Surgery has any one had any success
Yes Hannes I take topmax one 25mg at night and one 25mg in the morning works for me. I lost c5 c6 and part of c7. It toke the doctors a year to tell me what was wrong. Your in good shape to have knolage early on. So move quicklly. And good luck. Many pepole here will help you. Paul
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Hannes
Re: Surgery has any one had any success
Thanx Paul! Could you please send me the active substance (agent?)of topmax? I dont think that in germany it has got the same name! Meanwhile I have some very good relations to my chemist´s 
! Hannes
! HannesRe: Surgery has any one had any success
Hannes I spelled it wrong its Topamax. I have book at the office physician desk reference i will look at it tomrrow. We also have a topic or string as the Brits call it with Topamax is talked about alittle further down the 1st page. If you jump on that some pepole watching that topic might help you !!!!!!!!!!!!!!! Paul
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Surgery has any one had any success
Hi Hannes, welcome!
Someone asked what meds people were taking on the adult tbpi message board and many people listed their current drugs, this thread might be helpful to you http://pub28.ezboard.com/fadultswithbra ... =442.topic
Your English is MUCH better than my German, don't apologise. You may find some words in the link above that are not familiar, some are swearwords (it's an adult message board!) any others you don't understand I'll be happy to explain.
Check the thread below about Topamax, but take note of the side effects people have experienced, some of them look pretty serious. It might be worth checking with your bpi specialist if there is a pain clinic attached to the facility where your surgery was done. Most of us do see the pain easing within 2 years, many before that, good luck:0)
Someone asked what meds people were taking on the adult tbpi message board and many people listed their current drugs, this thread might be helpful to you http://pub28.ezboard.com/fadultswithbra ... =442.topic
Your English is MUCH better than my German, don't apologise. You may find some words in the link above that are not familiar, some are swearwords (it's an adult message board!) any others you don't understand I'll be happy to explain.
Check the thread below about Topamax, but take note of the side effects people have experienced, some of them look pretty serious. It might be worth checking with your bpi specialist if there is a pain clinic attached to the facility where your surgery was done. Most of us do see the pain easing within 2 years, many before that, good luck:0)
Re: Surgery has any one had any success
Hannes Jenny is right I had less pain after 11/2 or so. Oh ya they call topics-thread not string, to me they are both some thing you sew a dress with and i don't sew anything. Paul
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jennyb
- Posts: 1183
- Joined: Fri Nov 02, 2001 5:24 pm
- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: Surgery has any one had any success
hahaa Paul good job you don't sew if you think thread and string are the same! lolol
Incidentally, it is possible to sew with one hand, and I've done it, but it ain't easy so why bother? :0)
Incidentally, it is possible to sew with one hand, and I've done it, but it ain't easy so why bother? :0)
Re: Surgery has any one had any success
You sow with one hand??? Jenny I am impressed!! You rock!!! Paul- check out my comments on this site under the topic: need help
Re: Surgery has any one had any success
ok Princess
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Hannes
Re: Surgery has any one had any success
NEWS!!! I heard about an op-method called "DREZ" (think it´s the german name), which is said to eleminate the pain with a success rate up to 60%. Procedure: They prick a needle in your spinal cord, on the position where your nerve roots are pulled out. Then they give some temp on the needle and obliterate the spot. They repeat this procedure a few times downwards to the top of the first "healthy" root. Of course, a general anesthetic is needed. Maybe this OP makes possible a grug-free-life!?! The side effect is that you can loose your sensibility! Could you please ask your docs whether they know this method, or not.
Do you remain in this topic as long as your rehab goes? Mine will take at least 1 1/2 years. Would be nice to compare notes with you!
Hannes
Do you remain in this topic as long as your rehab goes? Mine will take at least 1 1/2 years. Would be nice to compare notes with you!
HannesRe: Surgery has any one had any success
Why bother Jenny. I use to build race bikes with two hands, till 1 or 2 am. That i would race. And i really miss that. The building.........Paul