wow, speechless

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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s8n
Posts: 223
Joined: Wed Jun 04, 2008 11:51 am

Re: wow, speechless

Post by s8n »

yea hats off. i like the layout!!! might wanna send out emails tho ......took me awhile to figure out what was going on. but......maybe it ws just me.
daniel "s8n"
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: wow, speechless

Post by marieke »

I love it too, but agree with Daniel. It took me a while to figure out why I could not access the site with my "favorites" bookmarked.

Just a thought, every time you guys update the site, warn us first please, so that we may know that we need to "re-save" our bookmarks once we sign in to the new upgrades...

Marieke 34, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: wow, speechless

Post by Carolyn J »

THANK YOU to everyone who brought us this Updated web site!!!! I'll figure it all out in time. I LOVE IT!!

Carolyn J
LOBPI/age 71---not too 'puter literate, takes alot of time!
Carolyn J
Adult LOBPI
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