I have ROBPI, so bad circulation.
When the weather starts getting cooler, my hands always get cold. That makes my hand hurt pretty bad, along with my whole arm. I try to wear long sleeves to keep my arm warm, but sometimes that doesn't seem to help. I went to the doctor for this problem and he said just to keep it warm, and wear a glove on my hand? I'm not quite sure that would work. I also don't really want people asking me why I'm wearing one glove. Does anybody have any tips on how to help this problem?
Bad circulation...
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SarahxG
- Posts: 64
- Joined: Mon Sep 21, 2009 9:33 pm
- Injury Description, Date, extent, surgical intervention etc: To make an incredibly LONG story short...
When I was born, my mother's doctor was out of town. A doctor that would not perform c-sections was forced upon us. Being 10 lbs, my right shoulder got stuck under my mom's pubic bone. The doctor pulled me out by my head, which ripped/streched all the nerves in my neck and arm (So, OBPI).
I've had two surgeries at 9 months old, and 3 years old.
My mother suffered as well. She needed both brain surgery and a shunt--She still sufferes today.
My parents lost the court case due to a terrible jurey.
That's about it!
Hope I can find somebody my age to talk to :)
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Bad circulation...
Try to keep it moving as much as you can.
If you are at home you can use those microwave hot packs (the ones with the peas or whatever they are inside).
I try to keep my hand in my pocket to keep it warm as well.
Marieke 33, LOBPI
If you are at home you can use those microwave hot packs (the ones with the peas or whatever they are inside).
I try to keep my hand in my pocket to keep it warm as well.
Marieke 33, LOBPI
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Bad circulation...
What about a arm sleeve? They have them in sporting good stores. I was actually thinking about getting myself some. Or even at medical supply stores whichever. Hmmm, going to the mall tomorrow, might look for some.
Here are some examples...
http://www.amazon.com/Colonial-Medical- ... 86&sr=8-34
http://www.amazon.com/Mcdavid-Power-Sho ... 49&sr=8-50
-Traci
Here are some examples...
http://www.amazon.com/Colonial-Medical- ... 86&sr=8-34
http://www.amazon.com/Mcdavid-Power-Sho ... 49&sr=8-50
-Traci
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SarahxG
- Posts: 64
- Joined: Mon Sep 21, 2009 9:33 pm
- Injury Description, Date, extent, surgical intervention etc: To make an incredibly LONG story short...
When I was born, my mother's doctor was out of town. A doctor that would not perform c-sections was forced upon us. Being 10 lbs, my right shoulder got stuck under my mom's pubic bone. The doctor pulled me out by my head, which ripped/streched all the nerves in my neck and arm (So, OBPI).
I've had two surgeries at 9 months old, and 3 years old.
My mother suffered as well. She needed both brain surgery and a shunt--She still sufferes today.
My parents lost the court case due to a terrible jurey.
That's about it!
Hope I can find somebody my age to talk to :)
Re: Bad circulation...
Okay thanks.
I'll have to try those out.
I play basketball so I figured I keep it moving enough.
But I guess not.
Sarah/ROBPI/13
I'll have to try those out.
I play basketball so I figured I keep it moving enough.
But I guess not.
Sarah/ROBPI/13
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Master DIVER TOM
- Posts: 759
- Joined: Tue May 05, 2009 11:51 am
Re: Bad circulation...
Bad circulation is part of the injury. Over my life time my erbs arm and hand has stayed all types of red. What bugs me in the cold it will change to shades of purple. Dont let it bug you, In winter ware a glove and dont let a doctor take your blood preasure in your erbs arm the preasure is differant because the circulation is differnt. Play baseball and forget about the color change unless a doctor tells you diffent.
Tom
Tom
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Bad circulation...
Sarah
I'm sure you have heard that you are not to by bp taken on the obpi side. You are also not supposed to get injections or IV sticks. I learned that as a child and when I first came to ubpn many people thought that because of the numb spots it was OK. Since that time many doctors agree that shots and IV sticks and bp are not to be taken on the bpi side.
My hand and arm freeze even when I type and use it. I often buy fleece jackets with pockets to keep my hand warm when I don't have to use it. I played basketball when I was young and I still froze on the right side. I just had no one who understood or could help me understand that it's part of the injury. If you get to camp you will see many adult obpi trying to keep their arms warm with extra things.
I hate the cold because it requires more clothing on that side.
Kath robpi/adult
I'm sure you have heard that you are not to by bp taken on the obpi side. You are also not supposed to get injections or IV sticks. I learned that as a child and when I first came to ubpn many people thought that because of the numb spots it was OK. Since that time many doctors agree that shots and IV sticks and bp are not to be taken on the bpi side.
My hand and arm freeze even when I type and use it. I often buy fleece jackets with pockets to keep my hand warm when I don't have to use it. I played basketball when I was young and I still froze on the right side. I just had no one who understood or could help me understand that it's part of the injury. If you get to camp you will see many adult obpi trying to keep their arms warm with extra things.
I hate the cold because it requires more clothing on that side.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Bad circulation...
Check these out!
http://www.littlemissmatched.com/Catalo ... rm_warmers
Francine had posted this link in another post.
Marieke 33, LOBPI
http://www.littlemissmatched.com/Catalo ... rm_warmers
Francine had posted this link in another post.
Marieke 33, LOBPI
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Bad circulation...
I've had VERY POOR Circulation on my left BPI side all my life. It Sucks. I'm going to get these warmers, thanks for the links Traci & Marieke. 
Carolyn J
LOBPI/71
Message was edited by: Carolyn J
Carolyn J
LOBPI/71
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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SarahxG
- Posts: 64
- Joined: Mon Sep 21, 2009 9:33 pm
- Injury Description, Date, extent, surgical intervention etc: To make an incredibly LONG story short...
When I was born, my mother's doctor was out of town. A doctor that would not perform c-sections was forced upon us. Being 10 lbs, my right shoulder got stuck under my mom's pubic bone. The doctor pulled me out by my head, which ripped/streched all the nerves in my neck and arm (So, OBPI).
I've had two surgeries at 9 months old, and 3 years old.
My mother suffered as well. She needed both brain surgery and a shunt--She still sufferes today.
My parents lost the court case due to a terrible jurey.
That's about it!
Hope I can find somebody my age to talk to :)
Re: Bad circulation...
Kath,
I honesty did not know that you're not supposed to get injections on the bpi side. Nobody has ever told me that. I've never had any IVs in that side just because I don't have any good veins. I think I might have had bp taken from the side too. I also don't have numb spots. I'll definitely have to let my mom know what you said.
I play basketball 5 days a week. And my arm still is freezing cold. Just like how you said yours was. I'm so glad it's not just me. I sometimes go down to the trainer and get a moist heat pack thing. That seems to help alot.
I haven't been to a camp yet. I'm really hoping to go to one soon. I'm not sure when they are, but my mom has been looking into it.
You're right, the cold sucks.
Thanks!
Sarah/ROBPI/13
P.S. Thanks everybody else for the links!
I honesty did not know that you're not supposed to get injections on the bpi side. Nobody has ever told me that. I've never had any IVs in that side just because I don't have any good veins. I think I might have had bp taken from the side too. I also don't have numb spots. I'll definitely have to let my mom know what you said.
I play basketball 5 days a week. And my arm still is freezing cold. Just like how you said yours was. I'm so glad it's not just me. I sometimes go down to the trainer and get a moist heat pack thing. That seems to help alot.
I haven't been to a camp yet. I'm really hoping to go to one soon. I'm not sure when they are, but my mom has been looking into it.
You're right, the cold sucks.
Thanks!
Sarah/ROBPI/13
P.S. Thanks everybody else for the links!
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Bad circulation...
I did get some of the open fingered gloves, but they didn't go up high enough on my arm. My upper arm gets just as cold. I actually sat at my desk today with one arm in my sweatshirt and the other out. It's just that time of year. Couldn't find the Arm sleeves at Dick's sporting goods, but I'm still looking, someone carries them.
-Traci
-Traci