Botox

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Its1105
Posts: 110
Joined: Sat Dec 20, 2008 9:44 pm
Injury Description, Date, extent, surgical intervention etc: RTBPI - injured during a right cervical rib resection on 12/3/2008 for thoracic outlet syndrome. The doctor completely transected the lateral cord at C5-C6 Erb's pointe and the suprascapular nerve. Had a nerve repair done on 12/12/2008 to reattach the nerves. Did two years of OT. I have some issues with overuse issues with my left shoulder and also have come to find that my joints are hypermobile so I have instability in the joints which causes a lot of problems such as pressure and pain.
Location: Indiana
Contact:

Botox

Post by Its1105 »

Does anyone have experience using botox to make a muscle weaker?

My OT has mentioned it for my left scalene muscles as I am developing Thoracic Outlet Syndrome on my left side.

I am skeptical to do it though as I recieved my BPI from a surgery for TOS on my right side. If the botox is injected incorrectly I am worried about it paralyzing my left muscles and/or hurting a nerve.

Any thoughts would be much appreciated. Thanks

(I have seen previous posts by users, but they seem to focus more on muscles in the arm)
--
Marie
RTBPI December 2008
C5-C6
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Botox

Post by marieke »

I had Botox used to weaken my left leg (to get rid of spasticity) for over 2 years. (I have a spinal cord injury from 2004).
It wear off after 3-6 months. Try it once see if it works for you/if it is worth doing again.

Marieke 33, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Cole's Mommy
Posts: 95
Joined: Sat Dec 15, 2007 2:48 pm

Re: Botox

Post by Cole's Mommy »

(Different I know...but) My son has had his internal rotators botoxed twice now, both times with remarkable results and gains for his weaker external rotators. I understand the "what if" feeling...it will forever be hard to completely trust a procedure. But again, with practically "no risk", the outcomes have been amazing.
User avatar
nkjacoby
Posts: 81
Joined: Sat Jun 21, 2008 9:06 pm
Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!

Re: Botox

Post by nkjacoby »

Botox was used to weaken my son's left tricep muscle. I would be more than glad to describe our experience via email. If you are interested please feel free to email me at njacoby499@yahoo.com. Look forward to hearing from you.
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
Its1105
Posts: 110
Joined: Sat Dec 20, 2008 9:44 pm
Injury Description, Date, extent, surgical intervention etc: RTBPI - injured during a right cervical rib resection on 12/3/2008 for thoracic outlet syndrome. The doctor completely transected the lateral cord at C5-C6 Erb's pointe and the suprascapular nerve. Had a nerve repair done on 12/12/2008 to reattach the nerves. Did two years of OT. I have some issues with overuse issues with my left shoulder and also have come to find that my joints are hypermobile so I have instability in the joints which causes a lot of problems such as pressure and pain.
Location: Indiana
Contact:

Re: Botox

Post by Its1105 »

Hey everyone!

Thanks for the information.

I am slowly beginning to consider it more and more after reading about it, but I guess still nervous. I do not think I would try anything until summer 2010 though as I do not want to risk it affecting my nursing clinicals. So I have plenty of time to research and figure it all out. Just want to get a head start.

Again thanks for the info!
--
Marie
RTBPI December 2008
C5-C6
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