Vote for a show onThe Doctors on BPI prevention.

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Vote for a show onThe Doctors on BPI prevention.

Post by Kath »

Please vote for show on Preventing Brachial Plexus injuries in newborns.
http://www.thedoctorstv.com/produce/idea_comment/881
The doctors have a place to suggest programs. I put up a suggestion that they do a show on Shoulder Dystocia and preventing brachial plexus injury.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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Judy-T
Posts: 557
Joined: Fri Nov 02, 2001 11:59 am
Injury Description, Date, extent, surgical intervention etc: Right arm OBPI One surgery at age 40 Ulnar nerve retransposition
Location: Florida

Re: Vote for a show onThe Doctors on BPI prevention.

Post by Judy-T »

Thanks Kath!!!!
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3princessesmom
Posts: 29
Joined: Mon Apr 27, 2009 2:17 pm

Re: Vote for a show onThe Doctors on BPI prevention.

Post by 3princessesmom »

GREAT! I voted also- I would love to see this topic discussed! Thank you- this is a great idea!
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: Vote for a show onThe Doctors on BPI prevention.

Post by Carolyn J »

PLEASE VOTE for this !
Carolyn J
LOBPI adult
Carolyn J
Adult LOBPI
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Vote for a show onThe Doctors on BPI prevention.

Post by Kath »

I have to thank Marieke for giving me the idea to post at The Doctors site.

Marieke posted a link for a show on demyelinating diseases. When I went to the site to vote for her suggestion I decided to put up a suggestion for bpi.



Thanks Marieke, please put up a link for that suggestion.
I am sure that many here will also vote for this type of show. I have a daughter with MS and would love to see more shows on this subject.


Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:
Contact marieke

Re: Vote for a show onThe Doctors on BPI prevention.

Post by marieke »

http://www.thedoctorstv.com/produce/idea_comment/878

This is my other cause :) Since I have BOTH OBPI and Transverse Myelitis since 2004
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Vote for a show onThe Doctors on BPI prevention.

Post by Kath »

Please vote and try to get family and friends to vote. It would be great if it could be done sometime during Awareness Week.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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User avatar
swhite1
Posts: 295
Joined: Mon Oct 16, 2006 4:15 pm
Injury Description, Date, extent, surgical intervention etc: Bad fall in June of 2006
LTBPI
Location: right here in Texas

Re: Vote for a show onThe Doctors on BPI prevention.

Post by swhite1 »

I don't even know what that show is or where it's aired but I registered and I voted.
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User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:
Contact marieke

Re: Vote for a show onThe Doctors on BPI prevention.

Post by marieke »

It airs every morning on CBS in my area.. might be on in the afternoon in other places.
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Vote for a show onThe Doctors on BPI prevention.

Post by Kath »

Please see if you can get your friends and family to vote for a show on BPI. Press is the key to prevention and possibly more research on the long term issues faced by obpi.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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