Chronic fatigue and OBPI

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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LJSL0330
Posts: 52
Joined: Wed Feb 27, 2008 9:09 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. Only surgical intervention was muscle lengthening at 2-3 y/o. PT at 35 which increased passive ROM by did not improve active ROM. Also have scoliosis due to left shoulder "hiking."
Location: Evansville, Indiana

Chronic fatigue and OBPI

Post by LJSL0330 »

It seems like I am always tired, no matter how much I sleep. I have an appointment to talk to my doc about it and do tests to rule out thyroid problems, anemia, etc.... But, I'm starting to wonder if it is somehow related to my OBPI. All the other factors that I'd always attributed it to are gone now, but I am still exhusted all the time.

Everything is connected in the body, particularly when you thing about the skelatal system. I wonder if being tired is caused by all the strain on my "framework" that is caused my the OBPI. (My shoulder being higher on the left causes my scoliosis, which puts my hips out of line and that strains my knees.) With all the misalignment, the muscles surrounding the bones are surely stressed as well. Even without chronic pain, I wonder if those strains just tire me out when I try to do anything that takes effort - houseowrk, exercise, etc...

I just wondered if anyone else has this problem and what may have helped them? Any ideas?
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Chronic fatigue and OBPI

Post by marieke »

You should get a sleep study done, either an at home one or in the hospital to look for sleep apnea. It is common yet very under-diagnosed!

Get an appointmet with an OTL (ear nose throat) or Respirologist.

Marieke 33 LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
LJSL0330
Posts: 52
Joined: Wed Feb 27, 2008 9:09 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. Only surgical intervention was muscle lengthening at 2-3 y/o. PT at 35 which increased passive ROM by did not improve active ROM. Also have scoliosis due to left shoulder "hiking."
Location: Evansville, Indiana

Re: Chronic fatigue and OBPI

Post by LJSL0330 »

But I don't think it is that. My husband says I don't sound like I have apnea when I am asleep AND I dream - which means I'm getting to REM sleep. (Not getting all the way into REM sleep is why people with apnea don't get restful sleep.)
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Chronic fatigue and OBPI

Post by marieke »

I have sleep apnea and I dream and I don't snore.. it's not as cut and dry as that. Seriously, think about getting a referral, the worst they can say is No you don't have it.

Marieke 33, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
User avatar
LJSL0330
Posts: 52
Joined: Wed Feb 27, 2008 9:09 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. Only surgical intervention was muscle lengthening at 2-3 y/o. PT at 35 which increased passive ROM by did not improve active ROM. Also have scoliosis due to left shoulder "hiking."
Location: Evansville, Indiana

Re: Chronic fatigue and OBPI

Post by LJSL0330 »

Hmmmmmmm..... I will check on that with my doctor also. Thanks!
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