What should i ask tomorrow!?

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Michelle_16

What should i ask tomorrow!?

Post by Michelle_16 »

Hi!
Well its 2moro i go to the hospital for the 1st time!!!
Ah im excited! Im jst here to ask wot kinda questions i should be asking the doctor?
Can anyone help.

Michelle x
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: What should i ask tomorrow!?

Post by jennyb »

hi michelle, you're seeing Prof. Birch aren't you?
It might be worth asking him what the outlook for you in the future is-his clinic has been doing this stuff so long, they mmust have data about what to expect. Maybe ask if there is any way to avoid things getting worse, short of surgery.
You've probably gone blank at the thought of finally seeing a specialist-think back over the questions you've asked on this message board over time, and ask some of those questions to Prof Birch. Write down all your questions before you go or you'll forget them!
Looking forward to hearing what he says to you, good luck Michelle, I'm excited for you too! Jen NZ
jep98056
Posts: 322
Joined: Sun Apr 14, 2002 10:25 pm

Re: What should i ask tomorrow!?

Post by jep98056 »

Michelle: You must be anxious to meet with your physician and I'm very excited for you. Jenny is correct that you should come in with a list of specific questions. Make copies of your list so the doctor has a copy and so you and others with you can refer to the list as the appointment goes along. Also, at the end of the appointment, refer back to your list to make sure everything as been covered.

I recently had a similar appointment about my robpi and here's some questions from my list:
1. What is the type and extent of the BPI; stretch, rupture, avulsion?
2. Which nerves are involved?
3. How does the nerve injury result in the contraction and lack of motion?
4. Are there any treatments available to improve the function of the hand, arm, and shoulder?
5. Would surgery be possible and, if so, what type and to what extent would improvement be possible?
6. Should a physical therapist be consulted, and if so, are there local therapists that specialize in BPI?
7. What is the prognosis for the future with and without surgery and/or physical therapy?

You might also consider preparing a little background information about yourself -- what you can and cannot do, what you want to be able to do, issues of pain/discomfort that you're experiencing, your interests, and your feeling about your injury. Also, having a copy of your essay available for the doctor would show that you're serious about achieving the maximum possible recovery. Remember to make your feelings known.

Hope you receive this in time for your appointment. Looking forward to your report back.

John P.
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