Back from surgery again!

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Back from surgery again!

Post by Kath »

Hi All

Wednesday I had three new stents placed in my heart.

Many years ago when there were only a few adult/obpi on the message boards we wondered how we would know about heart symptoms since we all seemed to have neurological pains.

I can truly say that my heart symptoms were typical but due to other pains... I thought they were mild pressure and my unaffected arm always hurt and my neck and shoulder...


On Wednesday I went into surgery assuming I would be getting a stent... I had two stents for 90% blockage in my LAD.
The checked out the first stent they placed in my RCA on 4/1/09 and discovered it was blocked with scar tissue. It is considered rare for a stent to develop that type of scar tissue in 4 months but they had to clean it out and place a new different type of stent inside it.

I feel good and on my way to mending. I just want all of you to pay attention to "mild chest discomfort" don't be shy about reporting them to a cardiologist. Pay attention to some of the pains in the unaffected arm and be aware that they could be cardiac caused... I went to a neurologist who missed all of these symptoms as Cardiac and was annoyed I could not pinpoint my pain...
Luckily, for me, my family genes are for Cardiac issues and I've been tracked all these years due to high incidence of heart disease in my immediate family. I had great Cardiac Care with only a mere mention of some discomfort in my chest and my doctor knew I had neuro pain and high pain threshold. YOU must have these things checked out and not dismiss your pain, as we are use to doing...

ONLY stepping off my soap box today! due to the need for rest since I am only 48 hours out of surgery...

Kath Robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: Back from surgery again!

Post by Master DIVER TOM »

You almost Scared Me! We who have soap boxs need to hang around. Your point is VERY real but I like the pressure on my heart at a hundred feet and petting white tip sharks. This is very good advice for all of us but please dont
make it another WORRY OK! Stress KILLS TO.

HUGS!

Tom
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Back from surgery again!

Post by Kath »

Tom
While you like to pet sharks... You still need to be aware that our bodies and our injury causes us to ignore most pains. I don't worry and that is how I let this pain go for way too long. I WAS NOT ASKING PEOPLE TO WORRY... Just pay attention to symptoms and have regular check ups. Especially for women since that is a serious condition that many women tend to brush off!

My point was that people should not dismiss all pain as nothing... That is exactly what I did because it did not seem important to me that I was uncomfortable. Due to a life time of pain many OBPI tend to ignore somethings that require sound medical care.

Glad you enjoy diving but I hope you pay attention to many of the life changing illness that can come your way.

It is better safe than sorry when it comes to women and heart disease. We have very different symptoms than men.

Kath robpi/69 years of age
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Back from surgery again!

Post by Carolyn J »

AMEN, Kath!

Carolyn J
LOBPI/71
Carolyn J
Adult LOBPI
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: Back from surgery again!

Post by Master DIVER TOM »

Ok, I guess, I did not understand you.

Tom
User avatar
patpxc
Posts: 315
Joined: Sat Nov 03, 2001 1:06 am
Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis
Location: Ohio

Re: Back from surgery again!

Post by patpxc »

I am so glad things went well this time. Sounds like you're feeling better. It's he-- to get old, isn't it?
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Back from surgery again!

Post by Carolyn J »

I love getting old Pat, 'cause I can say anything I want now and don't give a hoot who still likes me....But I call it being "bossy"..LOL
Hugs,
Carolyn J
LOBPI/71
Carolyn J
Adult LOBPI
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: Back from surgery again!

Post by Master DIVER TOM »

Me To! My mom died at 54 from heart problems , I was 21. My brother had triple bypass and I saw my doctor! He dives, I had the eco cardograme twice and I still dive. I could of had a heart attack PETTING SHARKS or from depth. When I stated dont worry about something eslse. I tryed to be possitive, what is to much pain????? I know what you said was important! But not Fear or pain should be a downer or be little me. I have alot of injurys driving a semi over the years and so what?other driver , srug it off and me to. We have A LOT of problems with ERBS for sure! There Fear and Pain are real and what ever. But if someone one wants to bring up another thing FOR ME , A worry wart, I will take notice. You have read the post! Why Try?

Tom
zetagrl
Posts: 3
Joined: Thu Oct 16, 2008 8:14 pm
Location: Tulare, CA

Re: Back from surgery again!

Post by zetagrl »

Kath

I would love to hear more about your chest pain. I have had this pain in my chest since I was released from the hospital in 2005. I returned to the emergency room because I thought I was having a heart attack at 33 years of age.Plus I had artery damage. Since then I have been told that it's part of the healing process or it would go away eventually. In the heat it gets really bad and limits me which is difficult because I've always been active plus I'm a wife and a mom. The doctors don't understand this pain so I need some insight please.

Thank you
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