Question for Erb's Pasly

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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BritneyRocks
Posts: 2
Joined: Tue May 19, 2009 12:27 am

Question for Erb's Pasly

Post by BritneyRocks »

Hi Im 16 years old and I have Erb's Pasly and im going to therapy to help movment which have been helping. I was just curious If there is any sergury for fixing the length of my right arm cause it shorter cause of it and if there was a sergery where would I beable to get it done at and what would the cost be. I really want to get this done because I just hate having my arm shorter and I feel so cant think of the word but nervous showing it.
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Question for Erb's Pasly

Post by marieke »

There is a surgery but not everyone is a candidate for it. You would have to see a specialist, preferably a BPI specialist who knows what's what with your injury.

It's called "Ilizarov" technique and it's not an easy surgery to deal with.
http://en.wikipedia.org/wiki/Ilizarov_apparatus

My arm is shorter too, and I asked about this surgery too when I was 15 but I couldn't have it done as I had surgery to move some tendons around for more movement.

Marieke 33, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
BritneyFan
Posts: 2
Joined: Sun Jul 19, 2009 8:06 pm

Re: Question for Erb's Pasly

Post by BritneyFan »

Do you think it is painful like really bad painfull.Also is there another way to get it longer. oh btw it the Im the same person who asked I just lost my sign in password and login name.
Tessie258
Posts: 769
Joined: Fri Nov 09, 2001 8:15 pm

Re: Question for Erb's Pasly

Post by Tessie258 »

I e-mailed you.
Teresa
BritneyFan
Posts: 2
Joined: Sun Jul 19, 2009 8:06 pm

Re: Question for Erb's Pasly

Post by BritneyFan »

ya i know it jusr it was a while ago and i lost it sorry
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