You ARE welcome Chrissie...it's never too late...I was 66 when I found this web site and a name...I cried sooo much in relief I lived a life thinking I was the only one so I know how much our sharing means to you. Keep saving to come to Camp 2010...THAT is life-changing too. can't descibe it in words tho...
Carolyn J
New member from UK
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: New member from UK
Carolyn J
Adult LOBPI
Adult LOBPI
-
Michelle_16
Re: New member from UK
Hiya Chrissie
I am from the UK too! I live in Scotland but use this site for support rather than anything in the UK because they are more tailored for parents and young kids with erbs.
I know in scotland now they actually have a specialist Erbs team working from the Victoria infirmary which is pretty awesome.
Janny, I am also gutted about the camp! i was definately prepared to travel to meet some people with erbs 2! where in Scotland are you?
Michelle x
I am from the UK too! I live in Scotland but use this site for support rather than anything in the UK because they are more tailored for parents and young kids with erbs.
I know in scotland now they actually have a specialist Erbs team working from the Victoria infirmary which is pretty awesome.
Janny, I am also gutted about the camp! i was definately prepared to travel to meet some people with erbs 2! where in Scotland are you?
Michelle x
-
marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: New member from UK
Michelle, it will be in October of 2010 (so far as we know) but do not know where yet...
Marieke 33, LOBPI
Marieke 33, LOBPI
Re: New member from UK
Hi Michelle, sorry just seen this!!
Im just north of Aberdeen. Where are you?
Im just north of Aberdeen. Where are you?
-
Master DIVER TOM
- Posts: 759
- Joined: Tue May 05, 2009 11:51 am
Re: New member from UK
Hi, well I was born with erbs, I am 56. You are doing a awsome job with the erbs issues. I did not like theropy ether as a child. My mom stop trying with my erbs when she first saw me climbing a tall tree at 9. I learned to adapt my way to my limiations like climbing a tree basicly 0ne arm. Its funny how things work out in life. By doing thing my way I end up with my erbs diving a semi for 20 yrs with out a ticket or accident and I am a Padi Master Diver and dove over 500 dives since 1981. I like warm water to at 60 ft looking at creatures.
Best Wishes and tryies,
Tom
Best Wishes and tryies,
Tom