hello

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Janet&joseph
Posts: 7
Joined: Sun May 31, 2009 4:13 pm

hello

Post by Janet&joseph »

hello,

I am a new user and just wanted to introduce myself.

My name is Janet (23) and I am a new single mom to a beautiful baby boy as of 9/9/08 . He does have a severe ( from what I was told) case Of EP.

He is a few days shy of 9m. Ive seen few drs but they dont really give me information. Just tell me to file a law suite or not to file. I was recently told he needs surgery asap. Any moms that have any experience with a law suite and/ or surgery at this age? any input would be great! thanks.

[IMG]http://i42.tinypic.com/2w50zkz.jpg[/IMG]


Message was edited by: Janet&joseph
DianaLB1999
Posts: 22
Joined: Tue Nov 04, 2008 10:38 pm

Re: hello

Post by DianaLB1999 »

It would help if I knew what state you live in so that I can give you some good suggestions...Thanks!

Diana
Madison 1 year ROBPI
Janet&joseph
Posts: 7
Joined: Sun May 31, 2009 4:13 pm

Re: hello

Post by Janet&joseph »

I stay in Carson,California.
ironmansmom
Posts: 92
Joined: Sun Jul 27, 2008 7:15 pm

Re: hello

Post by ironmansmom »

Unfortunately, the window for nerve reconstruction is before 1 year old. I am sorry that your child and family has to go through this, but welcome to this site. My child is 11 1/2 years old with ROBPI. We have always seen Dr Nath in Houston, but there are many other great specialists out there. You can check out the medical resources page on this site.

Good luck!!

ironmansmom
DianaLB1999
Posts: 22
Joined: Tue Nov 04, 2008 10:38 pm

Re: hello

Post by DianaLB1999 »

Ok so time is of the essence! This is VERY important! You need to see a BPI specialist. You can check out the list of doctors on this site by state, but I would recommend that you seek multiple opinions. If you need anymore information, or anything please e-mail me at DianaLB1999@aol.com.

Diana
tkirkland
Posts: 55
Joined: Tue Mar 31, 2009 9:46 am
Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
Location: Rockland County, New York

Re: hello

Post by tkirkland »

Please see a specialist as soon as possible. By six months most specialists will begin to recommend surgery (if needed). There is only a small window (and you are just about there) you really need to get in with a specialist as soon as possible. Like people before me have already said there is a list of specialists on this website. My daughter has seen Nath in Texas and Kozin in Philadelphia, PA. Both great Docs!
PSMom
Posts: 2
Joined: Wed Jun 03, 2009 12:49 pm

Re: hello

Post by PSMom »

It is so frustrating that families still aren't getting good information about how to treat this challenge!

Please come to the San Diego Brachial Plexus Network picnic on July 12:

http://www.scbpn.org/familyevents.html

Dr. Nath from Houston will be there and gives free evaluations. You need to register at his site:

http://www.drnathclinics.com/

And you should check out his whole site. He has a ton of helpful information. You can also email him directly on his site and give him all of your son's info and he will reply amazingly quickly.

But, as others said, you will probably want to get a few opinions.

Rady Children's Hospital in San Diego also has specialists:

http://www.chsd.org/body.cfm?id=2316

It is overwhelming, but you will find amazing information and support on this site and hopefully make some California connections at the picnic.
Janet&joseph
Posts: 7
Joined: Sun May 31, 2009 4:13 pm

Re: hello

Post by Janet&joseph »

thanks ladies, I have seen a few people but I really want to go to Philly. I was referred to them by 2 doters and every where I look his name pops up. Anyone have any info on how to contact them? and any programs that would help me get there?
Janet&joseph
Posts: 7
Joined: Sun May 31, 2009 4:13 pm

Re: hello

Post by Janet&joseph »

(PSMom)
I was just looking into this and I am planing to attend. (just have to get some one to take me) Are there any meet ups in the Los Angeles area?


Message was edited by: Janet&joseph
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: hello

Post by marieke »

Just wanted to welcome you!

Marieke 33, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Locked