Finally!!! Some Help!!!

Treatments, Rehabilitation, and Recovery
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CyndiOden
Posts: 3
Joined: Thu Oct 31, 2002 10:52 am

Finally!!! Some Help!!!

Post by CyndiOden »

For 4 months I have been in such pain with my arm and hand... yall know what I'm talking about. My neuro surgeon has only been concerned with my neck and the surgery he did to remove blood clots... He didn't know what was going on with my arm... He just said, it is not broken....Well, now that it is starting to atrophy and I've been taking pain meds like M&Ms,(that don't completely work) he has taken me seriously. When another doctor gave me this info about brachial plexus injuries, I just cried & cried... because I felt like maybe i was crazy and this wasn't a real injury.. my doctor sure made me feel that way. Well, tomorrow I am having a mylogram/ct.... This is SO WONDERFUL to know I have something real......and there are other people out there.....THANKS to whomever started this website...my emotions have been up lifted.
Joy in FL
Posts: 357
Joined: Sun Nov 04, 2001 8:36 pm
Location: Georgia

Re: Finally!!! Some Help!!!

Post by Joy in FL »

Welcome Cyndi! Glad you were able to find us. I hated my mylogram! Don't be discouraged if it does not show anything. Sometimes they don't. Where are you from? Good luck tomorrow let us know how things go for you.
Joy in FL is now living in Georgia!
Left TBI on October 31, 1991
david wilson
Posts: 92
Joined: Tue Sep 10, 2002 11:53 am

Re: Finally!!! Some Help!!!

Post by david wilson »

hey cindi
know how you feel. hang in there. here is a site on pain
http://tbpiukgroup.homestead.com/centralpainbpi.html

it is time to get buisie as you need to see a specialist now to be within the 6mo window for optimum results if you chose surgery. read the old posts for a depth of experiances with this wonderful group that you have joined. stay in touch

ps tbpi ruins your abilaty to spell!!!
jennyb
Posts: 1183
Joined: Fri Nov 02, 2001 5:24 pm
Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.

Re: Finally!!! Some Help!!!

Post by jennyb »

Joy is right Cyndi, the mylegram isn't always accurate but it might help show what's wrong. I'm glad you found a doctor who at least knows what a bpi is, many people don't get a proper diagnosis for months, in some cases years. A tbpi from a road accident is a huge trauma, hope we long termers can be of some hlp and support :0)
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