Just recently I have had some serious issues with my spine. I have spinal stenosis of the lower back L1 thru L5. I have been in therapy for the last few months and was talking to PT today. I have always noticed that one leg is smaller (thinner) and it seemed to be a tiny bit shorter. I know my foot is smaller just as my hand is. I have what seemed to be a lack of full range of motion in my right ankle... so I asked him about it... he measured and my left foot flex is 12 and my right foot remains at 0 or netural... once again proving it's not just an arm...
At least I know I am not crazy.
I assumed that my back was bad because of the muscle imbalance and added to that I have had three children and all three were large babies... Now, I think it maybe because of the compensation combined with the normal wear and tear of pregnancy... anyone else have lower back, leg problems?
Kath
Lower back and leg question
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Lower back and leg question
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Lower back and leg question
Hi Kath,
Yes, I have everything you mentioned except your lumbar thingy.Back pain,in the small back area comes & goes and I believe it is all related to the spine not being aligned right,shortness on whole left side, & over-compensation of whole right side. I sure wish someone would do a study of a number of us adults and document our "similarities"....
Have a good weekend all,
Carolyn J
Yes, I have everything you mentioned except your lumbar thingy.Back pain,in the small back area comes & goes and I believe it is all related to the spine not being aligned right,shortness on whole left side, & over-compensation of whole right side. I sure wish someone would do a study of a number of us adults and document our "similarities"....
Have a good weekend all,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Lower back and leg question
Well, you know I had cervical spinal cord compression and now have a titanium plate in my neck. I also have a herniated thoracic disc--which occurs only in 3% of the population, spinal stenosis in another cervical disk and also lumbar -- I think L-5 and S-1 along with a lot of disc degeneration and arthritis.
The Dr. told me Erb's has nothing to do with it.
They tune me out when I say imbalance, overcompensation etc.We all know better. When I told them about UBPN--the Dr. said--how many people are in that organization? There are thousands out there who have no trouble at all as they get older. Yeh, right!!!
The Dr. told me Erb's has nothing to do with it.
They tune me out when I say imbalance, overcompensation etc.We all know better. When I told them about UBPN--the Dr. said--how many people are in that organization? There are thousands out there who have no trouble at all as they get older. Yeh, right!!!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Lower back and leg question
Pat
If there are thousands out there how come we never met them? Up until 5 years ago I never met anyone with OBPI... nor did most of my doctors.
Ask him if he can put you into contact with some of the thousands?
I think you should get some copies of Outreach and give them to him.
How can you twist a babies neck and tug and pull on the spinal column and not have the total spine affected?
What about compensation it has no impact? I guess OBPI are the only population where compensation does not take a toll...
Answers like that make me crazy. I must be getting old because I don't let them go anymore I address them head on. I will not accept that type of off handed untrue statement anymore they are insulting.
That's they type of answers my mother got when she questioned medical care... everything was a secret then including our medical records.
Kath
If there are thousands out there how come we never met them? Up until 5 years ago I never met anyone with OBPI... nor did most of my doctors.
Ask him if he can put you into contact with some of the thousands?
I think you should get some copies of Outreach and give them to him.
How can you twist a babies neck and tug and pull on the spinal column and not have the total spine affected?
What about compensation it has no impact? I guess OBPI are the only population where compensation does not take a toll...
Answers like that make me crazy. I must be getting old because I don't let them go anymore I address them head on. I will not accept that type of off handed untrue statement anymore they are insulting.
That's they type of answers my mother got when she questioned medical care... everything was a secret then including our medical records.
Kath
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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admin
- Site Admin
- Posts: 19873
- Joined: Mon Nov 16, 2009 9:59 pm
Re: Lower back and leg question
Kath,
I sent you of picture of me in my Erbie splint at 5 months. Can't seem to convert it to a jpeg file to post--don't know why.
I just quit going to the Dr. I offered the outreach and I heard an under the breath comment about people who think they know everything. It just amazes me that we can't get someone to do some clinical trial on adults and the effect Erb's has on the entire structural system. I know my arthritis ,carpal tunnel, scoliosis and spinal stenosis comes from Erbs. I'm sure a lot of other body systems are affected also. I'm wondering about vision. I'm the only one in my family tree that had to wear glasses at 5.
Am changing Dr's to a different hospital system. It will be interesting to see if I get some different opinions from a new Dr.
I sent you of picture of me in my Erbie splint at 5 months. Can't seem to convert it to a jpeg file to post--don't know why.
I just quit going to the Dr. I offered the outreach and I heard an under the breath comment about people who think they know everything. It just amazes me that we can't get someone to do some clinical trial on adults and the effect Erb's has on the entire structural system. I know my arthritis ,carpal tunnel, scoliosis and spinal stenosis comes from Erbs. I'm sure a lot of other body systems are affected also. I'm wondering about vision. I'm the only one in my family tree that had to wear glasses at 5.
Am changing Dr's to a different hospital system. It will be interesting to see if I get some different opinions from a new Dr.
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Lower back and leg question
Yeah you guys!! I am printing out this whole Topic page/s to present to, and have handy for, my present Dr. and all future Dr.s I'll see & consult in the future. Here it is, all in black & white!! I isn't just me!!!
Pat, please let us know what your new medical Doctors/consultants say. I do recomment printing this topic page/s out & take it with you to all appointments; they might listen to you better! Here's hoping.....
HUGS,
Carolyn J
Pat, please let us know what your new medical Doctors/consultants say. I do recomment printing this topic page/s out & take it with you to all appointments; they might listen to you better! Here's hoping.....
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Lower back and leg question
Hey everyone! Oh my gosh! I have had TBPI for 2 years and am having problems with my lower back, neck, hip and knee problems! As a medical professional, I know that the human body is based on symmetry and so do the doctors! If one body part is off even slightly, it affects everything! Someone definitely should study OBPI's, and the cumulative effects.
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Lower back and leg question
Amen to that! But no one is interested in studying the long term issues we face. I guess it some of them are proven it will come back to lawsuits and the $ awarded to children who are injured.
OBPI population are really IGNORED by the medical professionals. I guess they think we are cured or perhaps use to it... Sometimes it really gets to me. Medical professionals don't like patients to tell them their business... Yet they don't take the time to study us when were are their patients. When I buy a new plant I try to learn everything I can about it... I think many doctors don't want to take the time to put two and two together.
It is rare when a doctor asks how this injury has impacted us or how dealing and living with it affects our daily life...
Thanks for commenting on this problem.
Kath robpi/adult
OBPI population are really IGNORED by the medical professionals. I guess they think we are cured or perhaps use to it... Sometimes it really gets to me. Medical professionals don't like patients to tell them their business... Yet they don't take the time to study us when were are their patients. When I buy a new plant I try to learn everything I can about it... I think many doctors don't want to take the time to put two and two together.
It is rare when a doctor asks how this injury has impacted us or how dealing and living with it affects our daily life...
Thanks for commenting on this problem.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Lower back and leg question
I don't even know if I was a teenager yet when my back locked up sort of and I couldn't move. I have never known any other 12 year old to have lower back pain so bad they couldn't move. Now looking back I think most of my lower back issues were connected to my back pack or something because though it still comes and goes it hasn't been as frequent as when I was in school. Wish we had those wheely backpacks back then. Also I'm more aware of my movements. I use my lower back to help me reach...I told someone once that I know it was due to my BPI, she said no you're just getting old. I was 20 years old...
I also get sciatic pain down my leg. And if you are out of alignment your leg will be shorter. I've known lots of people that have had that too. Or maybe Chiro's just like to tell people that...who knows.
-Traci
I also get sciatic pain down my leg. And if you are out of alignment your leg will be shorter. I've known lots of people that have had that too. Or maybe Chiro's just like to tell people that...who knows.
-Traci
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kissygoose
Re: Lower back and leg question
I have arthritis in my lower back, right hip and right knee. The doctor I was seeing for a while said that those are all side affects of compensating for my LOBPI.