My name is Lindsey and i am 20 years old from columbus ohio. I have a Left OBPI, up until recently (thanks to searching online) i had little or no information about this injury and I dont know of any support groups or have anyone else i know that suffer's from this too. I was wondering if anyone could kind of point me in the right direction on who or what kind of specialist there is that could help me manage the pain. ive tried physical therapy, Orthopedic's and many others but none of the doctors i have seen had any idea about the injury and had to research it so im finding it hard to get help with managing the pain. Any information or even just someone else to talk to who is going through this too would be so wonderful im tiard of feeling so alone.
please feel free to email me if you feel you could help me. xobabylindseyxo1@yahoo.com
:] Lindz <3
New and need some help/info
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: New and need some help/info
Hi Lindsey
Welcome to UBPN. I'm glad you found us and now you know you are no long alone with this injury. Please feel free to ask any question you think of. There are no silly questions when it comes to obpi. We all have very similar problems as well as a deep desire to support each other. Most of us have the same story how we thought we were the only one's with a rare birth injury.
Kath robpi/adult
Welcome to UBPN. I'm glad you found us and now you know you are no long alone with this injury. Please feel free to ask any question you think of. There are no silly questions when it comes to obpi. We all have very similar problems as well as a deep desire to support each other. Most of us have the same story how we thought we were the only one's with a rare birth injury.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: New and need some help/info
Hi Lindsey,
Welcome to the site!
marieke, 33 LOBPI
Welcome to the site!
marieke, 33 LOBPI
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: New and need some help/info
Welcome...I think you'll find a very kind and open group of people ready and willing to answer all questions.
There's specialists that I'm sure others could recommend, I've never been to one yet but I know many others that have.
Nice to meet you!
There's specialists that I'm sure others could recommend, I've never been to one yet but I know many others that have.
Nice to meet you!
Re: New and need some help/info
Welcome Lindsey...just remember no question is dumb and go bucks!
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Lindsey_20
- Posts: 2
- Joined: Fri Feb 13, 2009 4:38 pm
Re: New and need some help/info
hi all-
thank you so much for your responces! im soooo excited that i found this site. i have found hope and having others to talk to i feel will really help me! im finally getting things underway and i was contacted this morning about the bpi clinic in cincy and im soo excited! im looking forward to getting to know each and everyone of you :]
--Lindz
thank you so much for your responces! im soooo excited that i found this site. i have found hope and having others to talk to i feel will really help me! im finally getting things underway and i was contacted this morning about the bpi clinic in cincy and im soo excited! im looking forward to getting to know each and everyone of you :]
--Lindz