We are going to be adding pages specifically for TBPI when our new software is ready, and we want to make it easier to find specialists who can help the TBPI community.
While many centers treat only OBPI, we are looking for centers who will see both children and adult TBPI.
So if you can, please either post here or email richard@ubpn.org so I can put the information together. I am also searching throughout the net for centers as well
Thanks for your help.
RIch
President UBPN
Looking for who you may have used for surgery and therapy
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
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RobertRacer
- Posts: 137
- Joined: Tue Sep 30, 2008 4:54 pm
- Injury Description, Date, extent, surgical intervention etc: 9/23/07 - LTBPI / Motorcycle collision
- Location: Birmingham, AL
Re: Looking for who you may have used for surgery and therapy
In response,
This is who I've been seeing, and who did my surgery as a result of my LTBPI from a motorcycle accident. I have no idea if he treats kids as I'm 31.
http://ubpn.org/medicalresources/meyer-contact.html
This is who I've been seeing, and who did my surgery as a result of my LTBPI from a motorcycle accident. I have no idea if he treats kids as I'm 31.
http://ubpn.org/medicalresources/meyer-contact.html
Robert - LTBPI/34/AL - Yamaha meets Ford Expedition....not good.
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PRISCILLA
- Posts: 100
- Joined: Sun Feb 15, 2004 5:43 pm
- Injury Description, Date, extent, surgical intervention etc: Son, traumatic injured (TBPI) - November 2003. 3 surgeries to date.
- Location: North Carolina
Re: Looking for who you may have used for surgery and therapy
Rich, James goes to Mayo in Mn. Drs. Bishop, Spinner & Shin. His therapist is Nancy Murphy in Charlotte, NC (Charlotte Institute of Rehabilitation). Dr. Maureen Nelson (PM&R) is also in Charlotte, NC. They all work closely together for James and have been amazing since his accident in 2003.
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chimley
- Posts: 40
- Joined: Tue Sep 09, 2008 1:40 pm
- Injury Description, Date, extent, surgical intervention etc: I am the wife of Rick, LTBPI. On 6/30/2008, our lives were forever changed. Rick was in a severe auto accident and sustained multiple injuries: broken jaw and facial bones, mild traumatic brain injury, L1 fracture, 4th cranial nerve palsy and LTBPI. With regard to the LTBPI, Rick has had an ulner nerve transfer (January 2009). We are now considering next steps in his treatment, perhaps some muscle transfers. Pain continues to be the worst thing about his injury. We are told that the pain goes away within five years or people have learned to deal with it. Meanwhile, we pray....and wait.
- Location: Michigan
Re: Looking for who you may have used for surgery and therapy
Rich,
Rick goes to Dr. Lynda Yang at University of Michigan Hospital, Ann Arbor. They have a Brachial Plexus Clinic there.
Kim
Rick goes to Dr. Lynda Yang at University of Michigan Hospital, Ann Arbor. They have a Brachial Plexus Clinic there.
Kim
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Its1105
- Posts: 110
- Joined: Sat Dec 20, 2008 9:44 pm
- Injury Description, Date, extent, surgical intervention etc: RTBPI - injured during a right cervical rib resection on 12/3/2008 for thoracic outlet syndrome. The doctor completely transected the lateral cord at C5-C6 Erb's pointe and the suprascapular nerve. Had a nerve repair done on 12/12/2008 to reattach the nerves. Did two years of OT. I have some issues with overuse issues with my left shoulder and also have come to find that my joints are hypermobile so I have instability in the joints which causes a lot of problems such as pressure and pain.
- Location: Indiana
- Contact:
Re: Looking for who you may have used for surgery and therapy
Hi.
I had Dr. Alexander Mih from the Indiana Hand Center perform my surgery. He mainly works with infant BPIs but I was referred to him and he performed my surgery - so I believe he also does adults TBPI, just not as often.
I also was referred to John E. McGillicuddy at the University of Michigan, Ann Arbor. I spoke with their office and they seem really good, but because of the situation with my injury and miscommunication (not U of Michigans fault at all though) I had already scheduled surgery with Dr. Mih.
Both have great credentials though. I had an excellent experience with Dr. Mih.
I had Dr. Alexander Mih from the Indiana Hand Center perform my surgery. He mainly works with infant BPIs but I was referred to him and he performed my surgery - so I believe he also does adults TBPI, just not as often.
I also was referred to John E. McGillicuddy at the University of Michigan, Ann Arbor. I spoke with their office and they seem really good, but because of the situation with my injury and miscommunication (not U of Michigans fault at all though) I had already scheduled surgery with Dr. Mih.
Both have great credentials though. I had an excellent experience with Dr. Mih.
--
Marie
RTBPI December 2008
C5-C6
Marie
RTBPI December 2008
C5-C6
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TBPI Parent
- Posts: 7
- Joined: Wed Jan 07, 2009 5:18 pm
Re: Looking for who you may have used for surgery and therapy
Dr. Curtain at Stanford Medical Center. TBPI on July 3, 2008, my son has had two surgeries thus far.
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Looking for who you may have used for surgery and therapy
Thanks guys,
Keep em coming!!
Keep em coming!!
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: Looking for who you may have used for surgery and therapy
bump
The information from here, will help us identify therapists and facilities that we are going to put into a separate area for those seeking information for TBPI. So if you haven't replied, consider doing so, it will help others
The information from here, will help us identify therapists and facilities that we are going to put into a separate area for those seeking information for TBPI. So if you haven't replied, consider doing so, it will help others
Re: Looking for who you may have used for surgery and therapy
Melanie had surgery with Drs. Shin, Bishop amd Spinner at Mayo and her neurosurgeon here in PA is Dr. Kim Harbaugh at Hershey Med.