Hi Everyone -
Learning about organization and posting for the first time -
I have Erb palsy and BP injuries in my right arm. I have had multiple surgeries including 90degree osteotomy.
I now have tremendous pain in my lower neck/shoulder in thorasic outlet area and have been diangosised with a Neuroma that basicly no one wants to touch! i am on my 5th surgeon - all say it has to come out but everyone says to complicated with my other injuries -
Any one out there that has similiar issues due to BP / EP?
Neuroma -- Brachial Plexus
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Neuroma -- Brachial Plexus
I have 2 questions:
1-how old are you?
2-have you ever been evaluated/or followed up by a BPI Specialist?
Carolyn J
LOBPI/70
1-how old are you?
2-have you ever been evaluated/or followed up by a BPI Specialist?
Carolyn J
LOBPI/70
Carolyn J
Adult LOBPI
Adult LOBPI