WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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SPAINR
Posts: 8
Joined: Wed Oct 09, 2002 5:21 pm

WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by SPAINR »

I FEEL REALLY BAD I DIDN'T GET A SECOND OPPION FROM SOMEONE ELSE WHEN HE WAS YOUNGER IF I HAD ONLY KNOWN ABOUT THIS TYPE OF INJURY I'M A MEDICAL ASSITANT I WORK WORKER'S COMP NOT PEDS WHERE DO I GO EVERYONE AT KAISER BRUSHING ME OFF THEY'RE AFRAID I'LL SUE PLEASE HELP!!!ANY INFORMATION WOULD HELP
Paula
Posts: 699
Joined: Wed Jan 09, 2002 11:52 pm

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by Paula »

Where do you live?
Paula
JENNIFERRYAN18MO
Posts: 7
Joined: Thu Oct 10, 2002 4:49 pm

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by JENNIFERRYAN18MO »

I LIVE IN SAC CA
SPAINR
Posts: 8
Joined: Wed Oct 09, 2002 5:21 pm

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by SPAINR »

DO YOU HAVE A CHILD WITH BPI?
SPAINR
Posts: 8
Joined: Wed Oct 09, 2002 5:21 pm

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by SPAINR »

IM GOING TO USE JENNIFERRYAN18MOS INSTEAD OF SPAINR
Mommyanders
Posts: 238
Joined: Tue Apr 02, 2002 4:28 pm

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by Mommyanders »

I live in the SF Bay area. We see a doctor at Standford Medical Center. But there is a Kaiser BPI specialist down in LA. I can't remember his name. I would love to help you in anyway I can. Fill free to e-mail me. Also, check out my website http://www.calebsjourney.anderson-clan.org for more information that might be helpful to you because you are in California.

Love,

Kari
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Cara
Posts: 497
Joined: Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc: My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Location: Indiana

Re: WE JUST NOW KNOW RYAN ARE 18 MO OLD HAS BPI FROM BIRTH

Post by Cara »

I am so sorry to hear this. Our daughter was sent home from the hospital without us being told that she had a problem. The couple of days we were in the hospital I didn't notice because they had her swaddeled up tight. I was changing her diaper and she threw a fit. her left arm hung limp at ther side. I freaked out, I thought she had a stroke! It took a great deal of insistance to get her to a neuroligist and into therpay. We will be praying for you and your family. I just want you to know that you are not alone in not being informed right away. It is not your fault. They do pedeatric exams in the hospital for a reason and any ped. worth his salt should catch this. It is like BPI is a "dirty little secret" that no one in the medical community wants to talk about.
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