Injury Description, Date, extent, surgical intervention etc: LOBPI no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth 1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
I could not find the original post, so cut/pasted this one from Kath:
I know we have a few new Adults on the boards and want to welcome them to join the Private Boards as well.
Marieke
Time to move this up for those who are not aware we have this board.
The girls are all posting away and finally one brave man has signed in.
I know for sure there are many men reading and not posting. I am surprised I have not hear from some who do post here.
Just email me if you want to enter the private board.
Just send you log in name to KathM@ubpn.org
I'd like to get into private board. I'll send login to Kath. She has been very helpful. I was just rejected by SSD and looking for attorney in Portland, Oregon. At 61, finally got pain management and SSD rejects me, so decided to got legal route. Thanks for being here!
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Note to All OBPI adult posters
We are very lucky to have a private place to post somethings that we need to share with only our peers.
However, please remember the others on these many board often learn from us and can teach us. So please remember to share information you may think will help the little and teen obpi's.
Jumping off my little short soap box... hope you don't mind the reminder.
