We are going through this technique with my daughter right now.. I am going to contact you directly...
Missy
Ilizarov Technique
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Parker's Parents
- Posts: 5
- Joined: Mon Mar 13, 2006 1:46 pm
Re: Ilizarov Technique
Amy
Parker has never worn an extension splint. It seems I read about it long ago, but no one has ever suggested it for Parker? It sounds great! I wonder why nobody has ever brought it up? Thanks!
Pam
Parker has never worn an extension splint. It seems I read about it long ago, but no one has ever suggested it for Parker? It sounds great! I wonder why nobody has ever brought it up? Thanks!
Pam
Re: Ilizarov Technique
I've seen some BPI kids with severe bowing of the upper or lower due to muscle imbalances. Is this what you are talking about? In that case, an osteotomy, which just involves a resetting of the bone into a new rotation at one discrete point, wouldn't do anything to correct the bow in the arm. That may be why the Ilizarov was recommended and not an osteotomy.
Kate
Kate
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rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: Ilizarov Technique
Hello
I had a consultation with Dr. Guggenheim and he told me I was not a candidate for the illizarov. However, I know a gal who had it done with Dr. Guggenheim. It is quite the contraption. If you would like I can get a hold of her and have her e mail you information. Her name is Deanna from Alabama. I haven't talked to her in a month or so but can get a hold of her for you if you would like. She was the first adult I think to have it done.
my email is marko@centurytel.net
I had a consultation with Dr. Guggenheim and he told me I was not a candidate for the illizarov. However, I know a gal who had it done with Dr. Guggenheim. It is quite the contraption. If you would like I can get a hold of her and have her e mail you information. Her name is Deanna from Alabama. I haven't talked to her in a month or so but can get a hold of her for you if you would like. She was the first adult I think to have it done.
my email is marko@centurytel.net
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AlannahD
- Posts: 234
- Joined: Mon May 09, 2005 3:55 pm
- Injury Description, Date, extent, surgical intervention etc: 7-year-old granddaughter, LOBPI
Re: Ilizarov Technique
I believe that on Dr. Nath's website there is a picture of a boy with this procedure, and of the brace that is required for wear. Camille B.
Re: Ilizarov Technique
Hello,
My BPI son is now 7 as well. When he was 3 he had about a 40% contracture at the elbow. The contracture was caused by muscle imbalance. He has very good bicept return but no triceps. We tried casting, splinting, it just was a temp fix. At age 3, we did bicept lenthening surgery. That was an immediate fix. It has stayed pretty much. At age 7, he does now have a slight less then 10 degree contracture at elbow which we are doing dynsplint at night. I think some of the bending is also preference. He tends to hold his arm that way too. Dr. Nath was the one who recommended the bicept at age 3 and Dr. Shenaq actually did the surgery. Back then they were both together and on surgery day either one of them could do it.
Dr. Nath does do the Bicept Tendon Lengthening too. Not sure if you were aware of this. Best of luck with your decision.
My BPI son is now 7 as well. When he was 3 he had about a 40% contracture at the elbow. The contracture was caused by muscle imbalance. He has very good bicept return but no triceps. We tried casting, splinting, it just was a temp fix. At age 3, we did bicept lenthening surgery. That was an immediate fix. It has stayed pretty much. At age 7, he does now have a slight less then 10 degree contracture at elbow which we are doing dynsplint at night. I think some of the bending is also preference. He tends to hold his arm that way too. Dr. Nath was the one who recommended the bicept at age 3 and Dr. Shenaq actually did the surgery. Back then they were both together and on surgery day either one of them could do it.
Dr. Nath does do the Bicept Tendon Lengthening too. Not sure if you were aware of this. Best of luck with your decision. -
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Ilizarov Technique
The International Center for Limb Lengthening (ICLL) is internationally recognized as the most experienced center for limb lengthening and reconstruction in the world, committed to providing the most comprehensive and technologically advanced treatments available for children and adults with upper and lower limb length discrepancies, short stature, limb deformities, nonunions, bone defects, bone infections, joint contractures, and arthritis. In addition, the ICLL has become a major referral center for the Ponseti method of clubfoot treatment and distraction treatment of Perthes disease, two new methods for the treatment of two common pediatric disorders. The ICLL also offers a state-of-the-art gait laboratory for motion and function analysis and other specialized studies. With an international reputation for excellence, the Center's physicians have treated patients from all 50 United States and more than 40 countries from six continents around the world.
The Most Experienced
Limb Lengthening Center in
the World.
Deformity Course
The ICLL, part of the Rubin Institute for Advanced Orthopedics, opened at Sinai Hospital of Baltimore in July 2001 in a brand new six-story facility designed by the Center's co-founders, Drs. Dror Paley, John E. Herzenberg, and Michael Mont. Drs. Paley and Herzenberg were previously part of the Maryland Center for Limb Lengthening & Reconstruction at Kernan Hospital for 14 and 10 years, respectively, and were the first team in the United States to dedicate their practices to limb lengthening and deformity reconstruction. To expand their facility and offer new and improved clinical and research services, they moved their operation to the new Rubin Institute for Advanced Orthopedics and added a third limb lengthening surgeon, Dr. Janet Conway. By teaming with Dr. Mont, the new Center is able to offer state-of-the-art joint replacement and joint preservation techniques that were not available at the MCLLR.
The ICLL is part of Sinai's Rubin Institute for Advanced Orthopedics (RIAO), which provides state-of-the-art orthopedic expertise in various subspecialties of orthopedic surgery, such as total joint replacement and treatments for avascular necrosis. The ICLL also has access to the full array of medical services available at Sinai Hospital, a 428-bed community teaching hospital with residency training programs in pediatrics, internal medicine, surgery, obstetrics and gynecology, and rehabilitation medicine. Sinai Hospital offers all the benefits of a modern teaching hospital, including up-to-date state-of-the-art anesthesia, pain management, radiology, and emergency and intensive care facilities, with the warmth and feel of a community hospital.
Dror Paley, M.D.
Co-Director
phone: 410-601-4200 John E. Herzenberg, M.D.
Co-Director
phone: 410-601-9562
Janet Conway, M.D.
Head of the Section of
Bone and Joint Infection
phone: 410-601-9573
Shawn Standard, M.D.
Pediatric Orthopedic Surgeon
phone: 410-601-9570
Bradley M. Lamm, D.P.M.
Head of the Section of Podiatry
phone: 410-601-0998
The International Center for Limb Lengthening
Sinai Hospital of Baltimore
2401 West Belvedere Avenue
Baltimore, Maryland 21215, USA
phone: 410-601-8700
toll-free: 800-221-8425
fax: 410-601-9575
The Most Experienced
Limb Lengthening Center in
the World.
Deformity Course
The ICLL, part of the Rubin Institute for Advanced Orthopedics, opened at Sinai Hospital of Baltimore in July 2001 in a brand new six-story facility designed by the Center's co-founders, Drs. Dror Paley, John E. Herzenberg, and Michael Mont. Drs. Paley and Herzenberg were previously part of the Maryland Center for Limb Lengthening & Reconstruction at Kernan Hospital for 14 and 10 years, respectively, and were the first team in the United States to dedicate their practices to limb lengthening and deformity reconstruction. To expand their facility and offer new and improved clinical and research services, they moved their operation to the new Rubin Institute for Advanced Orthopedics and added a third limb lengthening surgeon, Dr. Janet Conway. By teaming with Dr. Mont, the new Center is able to offer state-of-the-art joint replacement and joint preservation techniques that were not available at the MCLLR.
The ICLL is part of Sinai's Rubin Institute for Advanced Orthopedics (RIAO), which provides state-of-the-art orthopedic expertise in various subspecialties of orthopedic surgery, such as total joint replacement and treatments for avascular necrosis. The ICLL also has access to the full array of medical services available at Sinai Hospital, a 428-bed community teaching hospital with residency training programs in pediatrics, internal medicine, surgery, obstetrics and gynecology, and rehabilitation medicine. Sinai Hospital offers all the benefits of a modern teaching hospital, including up-to-date state-of-the-art anesthesia, pain management, radiology, and emergency and intensive care facilities, with the warmth and feel of a community hospital.
Dror Paley, M.D.
Co-Director
phone: 410-601-4200 John E. Herzenberg, M.D.
Co-Director
phone: 410-601-9562
Janet Conway, M.D.
Head of the Section of
Bone and Joint Infection
phone: 410-601-9573
Shawn Standard, M.D.
Pediatric Orthopedic Surgeon
phone: 410-601-9570
Bradley M. Lamm, D.P.M.
Head of the Section of Podiatry
phone: 410-601-0998
The International Center for Limb Lengthening
Sinai Hospital of Baltimore
2401 West Belvedere Avenue
Baltimore, Maryland 21215, USA
phone: 410-601-8700
toll-free: 800-221-8425
fax: 410-601-9575
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jquackenbush
- Posts: 47
- Joined: Thu Sep 04, 2003 5:13 pm
Re: Ilizarov Technique
Dr. Nath also recommended my son consider getting limb lengthening for his BPI arm and recommended that we see Dr. Paley in Baltimore. My son is almost 12 and wants righty to look like his uninjured arm so we are going to check it out. I hate to have a surgery that doesn't improve function so I'm not sure how I feel about it. Has anyone had or have considered limb lengthening for the BPI arm??
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Ilizarov Technique
This has been recommended for my daughter as well, by Dr. Nath. She is 14. He suggested Dr.GUGGENHEIM or Dr. Pauly out of Baltimore. Dr. Nath does not do this surgery. I would like to be in contact with anyone who is considering this, and or has had it done.
Thanks in advance,
Brenda
Thanks in advance,
Brenda