Hi- this is an amazing update! I'm so happy for you and for your sweet daughter! I hope you get the go ahead for the TES- I really think it's a very valuable modality for our kids.
-francine
Re: G'day
Re: G'day
Congrats!! And big hugs to you for your advocacy efforts for your daughter. Sometimes it can be easy to be intimidated or overwhelmed by the medical system, I'm happy to see that your efforts may make a difference for your daughter.
Best of luck,
Bridget
Best of luck,
Bridget
Re: G'day
Hello, It's great to see your name again. I'm so glad to hear of her progress. She must be so happy to be with your family! BTW, I saw her picture on Francine's site, and if I guessed the correct child, she is beautiful! I think it sounds like you've got a great plan. I'll be curious to know what you findout about the TES. We've been told that Nicole's too young to use it on her hand b/c her hand is simply not big enough for two electrodes (or even one for that matter). If her BP hand looks anything like Nicole's, then I imagine it's very small. The TES should hopefully help her wrist at this point though.
Also, have you ever heard the therapist use the term "tenodesis?" (sp?) If not, ask them about it. It's basically working on an alternative way to use the fingers when they won't extend on their own. I'll try to explain it. Hold your arm out straight in front of you with your fingers in a loose fist and your wrist straight. Then, lower your wrist up. You'll notice that when you lower your wrist, the fingers naturally open up a little -- even if there's not active finger extension. This will help to be able to release an object from the hand. Well, I hope this helps. Take care and keep in touch. -Tina, Mom to Nicole (3 y.o., LOBPI -- total - Erb's & Klumpke's)
Also, have you ever heard the therapist use the term "tenodesis?" (sp?) If not, ask them about it. It's basically working on an alternative way to use the fingers when they won't extend on their own. I'll try to explain it. Hold your arm out straight in front of you with your fingers in a loose fist and your wrist straight. Then, lower your wrist up. You'll notice that when you lower your wrist, the fingers naturally open up a little -- even if there's not active finger extension. This will help to be able to release an object from the hand. Well, I hope this helps. Take care and keep in touch. -Tina, Mom to Nicole (3 y.o., LOBPI -- total - Erb's & Klumpke's)
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Re: G'day
Hi Tina,
Yes her hand is smaller on her affected side. I don't know if it will be too small to do TES on it. We'll wait and see. Unfortunatlely we really don't have any wrist extension at the moment at least. I have the feeling that that is something that she is not going to get without surgery. Though we have been very pleasantly suprised with the improvement we have seen thus far!!! I only talk here about her BPI but she has lots of challenges
Thanks for complementing her. We think she is absolutely gorgeous! Getting more so every day- she had pretty low tone all over when we met her and very short hair but as she has become more robust and her hair has grown she has turned into a real beauty. My husband and I joke about it because it had nothing to do with us at all!!
Yes her hand is smaller on her affected side. I don't know if it will be too small to do TES on it. We'll wait and see. Unfortunatlely we really don't have any wrist extension at the moment at least. I have the feeling that that is something that she is not going to get without surgery. Though we have been very pleasantly suprised with the improvement we have seen thus far!!! I only talk here about her BPI but she has lots of challenges
Thanks for complementing her. We think she is absolutely gorgeous! Getting more so every day- she had pretty low tone all over when we met her and very short hair but as she has become more robust and her hair has grown she has turned into a real beauty. My husband and I joke about it because it had nothing to do with us at all!!