Arthrogryposis

[MisdiagnosedinCA]

Has anyone been diagnosed with bilateral brachial plexus palsy and then discover they really have arthrogryposis?

[rbwalton]

If they misdiagnosed you before, how do you know they are right this time? Is there a test for this?

[MisdiagnosedinCA]

The first doctor did not order any x-rays. The second set of doctors did look at x-rays of the entire arm and found her radial heads in the elbow were dislocated before birth. This was confirmed by three separate teams, including a genetist.

[claudia]

I found a support group for arthrogryposis.

amcsupport.org


good luck,
claudia

[jljm]

Somewhat similar situation here. Send me an e-mail if you would like to chat.