O.k. yep, it's me again and I'm still trying to figure out what the fudgecicles (why not type like I talk), anyway...what is going on with my BP hand.
I've been dealing with this mystery problem for more than 1 year, and I'm no closer to knowing what is happening.
When it started out they said it was trigger finger, turned out that's not what it was, my fingers never locked. Then they said it was a ganglion-like cyst. Again, I'm not thinking this is the case either since ganglion cyst are in joints. My lump was not in a joint. Now just the other day the lump disappeared, no warning no shrinking, just *poof* gone. Normally this would thrill me but the pain is still there, it hasn't lessened.
I am going to a Dr. in Sept, but I'm just trying to make sense of this before I go. I'm leaning towards Dupuytren's contracture. I am the least likely suspect for having it. But it runs in my family.
If anyone has thoughts or suggestions please share...I guess I'm just hoping to rule out that is has anything to due with my BPI, I want to go into my appt. informed since my last Dr. just blew me off without listening to me.
When I broke my wrist/arm years ago I actually fell onto a fence post and grabbed it with that exact spot on my hand. But again...my Dr. said that there's NO WAY that my hand pain and lump have anything to do with my BPI or my previous fall.
-Traci
Are OBPI adult at risk for hand conditions?
Re: Are OBPI adult at risk for hand conditions?
Traci,
I can't say what your problems may be, BUT....
Per my own experience. I have had 2 Ganglion cysts removed from the same (BPI)hand but NOT in a joint ! Just on the top of my hand below my wrist.
I have another one that has developed and now has weirdly split into two pieces so there are now twin "bumps". ?????????
Don't know how or why they form there, but they do and then I have them removed and there are never any ramifications (so far) good luck.
Tina
I can't say what your problems may be, BUT....
Per my own experience. I have had 2 Ganglion cysts removed from the same (BPI)hand but NOT in a joint ! Just on the top of my hand below my wrist.
I have another one that has developed and now has weirdly split into two pieces so there are now twin "bumps". ?????????
Don't know how or why they form there, but they do and then I have them removed and there are never any ramifications (so far) good luck.
Tina
Re: Are OBPI adult at risk for hand conditions?
It sounds to me like Dupuytren's could be the culprit. If you have not already I would see a Dr that is a hand specialist or an upper extremity specialist in your area and if and when you need to go to therapy I would see a therapist that specializes in hand therapy. They will know what to do. Good luck.
Becky
Becky
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Charlie O
- Posts: 18
- Joined: Sun Aug 10, 2008 9:52 am
- Injury Description, Date, extent, surgical intervention etc: ROBPI resulting from a birth injury. Limited motion at the shoulder, elbow, and wrist. No pain or surgeries.
- Location: Philly
- Contact:
Re: Are OBPI adult at risk for hand conditions?
I'm sure getting an education. I'd heard of ganglion cysts (having worked as an editor for medical journals), but never of Dupuytren's contracture.
As was noted earlier, ganglion cysts aren't necessarily on joints, they can form on tendons as well, and sometimes can disappear.
But I agree with those who said see a hand specialist.
* * * *
Just curious but... have been hearing alot about adult arthritic, orthopedic, and neurologic conditions related to OBPI. I s'pose this is what I have to look forward to.
As was noted earlier, ganglion cysts aren't necessarily on joints, they can form on tendons as well, and sometimes can disappear.
But I agree with those who said see a hand specialist.
* * * *
Just curious but... have been hearing alot about adult arthritic, orthopedic, and neurologic conditions related to OBPI. I s'pose this is what I have to look forward to.
If daydreaming were criminalized, I’d be a lifer.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Are OBPI adult at risk for hand conditions?
Charlie,
It is so interesting, and maddening too!!,we adults with OBPI's have so many different varieties of Neurological,Sensory,Respiratory(sp??),Artheritic and Orthopedic(spinal too) conditions as we've aged( not to mention a variety of injuries!!!)...what secondary medical issues you will have is a "crap shoot" guess... just please take care starting now, not to over-use or abuse your "good" limbs, shoulder and overall health.
One thing we all share is a high threshold for pain and a stubborn determination to to everything we want to do our way.
Hugs,
Carolyn J [yes, often bossy!]
LOBPI/70
It is so interesting, and maddening too!!,we adults with OBPI's have so many different varieties of Neurological,Sensory,Respiratory(sp??),Artheritic and Orthopedic(spinal too) conditions as we've aged( not to mention a variety of injuries!!!)...what secondary medical issues you will have is a "crap shoot" guess... just please take care starting now, not to over-use or abuse your "good" limbs, shoulder and overall health.
One thing we all share is a high threshold for pain and a stubborn determination to to everything we want to do our way.
Hugs,
Carolyn J [yes, often bossy!]
LOBPI/70
Carolyn J
Adult LOBPI
Adult LOBPI
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Are OBPI adult at risk for hand conditions?
I just came back from the Dr. today and I must say when you get a Dr. who listens and puts 2 and 2 together the feeling is the best.
He told me he wants to get an EMG and some X-rays so I'll know more later...but my mystery cyst can be better explained. He said it's probably tendonitis due to how weak my hand muscles are and trying to compensate for the lack of muscles. And it is connected to my BPI.
I'll keep everyone posted as to how this all goes...but I feel I'm on the right track, finally!
-Traci
He told me he wants to get an EMG and some X-rays so I'll know more later...but my mystery cyst can be better explained. He said it's probably tendonitis due to how weak my hand muscles are and trying to compensate for the lack of muscles. And it is connected to my BPI.
I'll keep everyone posted as to how this all goes...but I feel I'm on the right track, finally!
-Traci
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veggiebug
- Posts: 257
- Joined: Wed Mar 03, 2004 8:47 pm
- Injury Description, Date, extent, surgical intervention etc: I weighed 11 lbs. 4 oz. when I was born.
I was delivered by forceps which resulted in my ROBPI.
I've never had any surgical intervention. - Location: Williamsport PA
Re: Are OBPI adult at risk for hand conditions?
Sorry got it wrong it's Ulnar Nerve Palsy/Cubital Tunnel Syndrome.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Are OBPI adult at risk for hand conditions?
Ulnar Nerve Palsy.
Another possible adult secondary injury related to OBPI.
Is somebody keeping a list of these secondary conditions/injuries we get as adults with OBPI's?
I have lost tract of all the possible ones we've been sharing! Not every body gets the same ones.
HUgs,
"Gramma"Carolyn J
Message was edited by: Carolyn J
Another possible adult secondary injury related to OBPI.
Is somebody keeping a list of these secondary conditions/injuries we get as adults with OBPI's?
I have lost tract of all the possible ones we've been sharing! Not every body gets the same ones.
HUgs,
"Gramma"Carolyn J
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Re: Are OBPI adult at risk for hand conditions?
I have that and have had one surgery to correct it. It is back now,worse than ever. I have an appointment to see what can be done on the 25th of september.
Pat
Pat
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Are OBPI adult at risk for hand conditions?
OK, OK, I will take on the grueling task of listing all of the secondary injuries/medical conditions that we adults, one or another,NOT collectively, we've posted on the message Boards. These are the conditions we have developed in our adulthood-- post pediatric care.
It would help me if those who have the time, would please email me[click my name in blue to the left of this post to get my email].
Thank You.
HUGS,
"Gramma Carolyn J"
LOBPI--sometimes adult
It would help me if those who have the time, would please email me[click my name in blue to the left of this post to get my email].
Thank You.
HUGS,
"Gramma Carolyn J"
LOBPI--sometimes adult
Carolyn J
Adult LOBPI
Adult LOBPI