77 year old OBPI just found us and has questions

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

77 year old OBPI just found us and has questions

Post by Kath »

I've spoken to Norm a few times and told him I would post this on the Message Board for him. He would love some information on bpi and memory loss from all of us. He does not use his computer he said his wife does so please respond with anything you want to share with him.
Kath robpi/adult


This is his e-mail to me.......
I am a 77 year of man.. At birth I was 12 pounds and my parents were told that during the birth process my right arm was broken. The arm was casted for about 6 months. During my youth my right arm never developed and I became left handed. I had to see an orthopedist when I was in my 50's for another reason. We discussed my arm, an x-ray was taken and I was told my arm was never broken but I had Erbs Palsy.It is my understanding that Erbs Palsy affects nerve endings. I have had some difficulty with memory and would be interested if other people who suffer from Erbs Palsy also have memory problems.

My name is Norm and I can be reached at NJHerl@aol.com
Kath robpi/adult

Kathleen Mallozzi
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: 77 year old OBPI just found us and has questions

Post by Kath »

Has anyone shared with Norm memory loss experiences ?

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: 77 year old OBPI just found us and has questions

Post by Carolyn J »

Kath,
I am emailing him this morning.
If you Talk to him again, I'd sure like to hear how he is doing in other areas other than Memory loss. I am happy to know someone older than I!!! :)

Very busy weekend;I only had time to email Joanie.

I hope you are feeling better this week too.
HUGS all around,
Carolyn J


Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: 77 year old OBPI just found us and has questions

Post by Kath »

Carolyn
Memory lapse seems to be his major problem at this time.
He visited a bpi doctor who said he never heard of any memory loss connected to bpi injury.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: 77 year old OBPI just found us and has questions

Post by marieke »

As I mentioned before, it would not be connected as memory is the brain function and BPI is spinal nerves...

He is 77... unfortunately, as some age, memory goes, can be due to Alzeimer's, old age dementia, TIA (very common), stroke even depression.

Has his MD suggested an MRI or CT scan?

Marieke 32 LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: 77 year old OBPI just found us and has questions

Post by Carolyn J »

Memory Loss can also be a Side Efect for many medications unfortunately. But yes, Marieke "Nursee" :), your list is also very very on target too.

HUGS all around,
Carolyn J
Carolyn J
Adult LOBPI
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